1.Social media content analysis of public and private Glucose-6-Phosphate Dehydrogenase (G6PD) deficiency facebook groups
Ebner Bon G. Maceda ; Michelle E. Abadingo ; Bubbles Beverly N. Asor ; Rizza Kaye C. Cases ; Renchillina Joy G. Supan ; Kia S. Anarna ; Patricia Carla A. Libo-on ; Theodore Delfin C. Vesagas ; Ma-Am Joy R. Tumulak
Acta Medica Philippina 2024;58(Early Access 2024):1-12
Background:
As social media continue to grow as popular and convenient tools for acquiring and disseminating health information, the need to investigate its utilization by laypersons encountering common medical issues becomes increasingly essential.
Objectives:
This study aimed to analyze the content posted in Facebook groups for Glucose-6-Phosphate Dehydrogenase (G6PD) deficiency and how these engage the members of the group.
Methods:
This study employed an inductive content analysis of user-posted content in both public and private Facebook groups catering specifically to G6PD deficiency. The G6PD Facebook groups with 10 or more posts within the past 12 months were selected for this study. Data were harvested from posts and comments using ExportComment.
Results:
A total of 46 G6PD-related Facebook groups were identified. Of which, 19 were public and 27 were private groups, with an average membership of 5000-6000 accounts. After eligibility based on criteria and authorization for private groups, 3 public and 3 private groups were included, with the majority of these groups focused on sharing information. Five main themes of posted content were identified: diagnosis, management, beliefs, psychosocial factors, and medical requirements. “Diagnosis”-related posts referred to conversations about the causes and symptoms of G6PD, “management” referred to medication or diet, “beliefs” involved traditional or lay perceptions, “psychosocial factors” referred to posts that disclosed how psychosocial factors influenced G6PD deficiency practices, and “medical requirements” referred to documentation regarding
the condition. The bulk of these posts used three strategies for communication: information-requesting,
self-disclosure, and promotion of products/services. Information requests were the most common.
Conclusion
The results of the study showed opportunities and challenges in health education on G6PD, especially in evaluating the credibility and accuracy of the information given and received. Looking at the content and manner of communicating information noted, the newborn screening program may improve its advocacy and education campaign, and may develop targeted educational materials and effective dissemination strategies that could clarify, explain, or refute information and beliefs mostly shared on these platforms.
Glucosephosphate Dehydrogenase Deficiency
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Self-Help Groups
2.Social media content analysis of public and private Glucose-6-Phosphate Dehydrogenase (G6PD) deficiency Facebook groups
Ebner Bon G. Maceda ; Michelle E. Abadingo ; Bubbles Beverly N. Asor ; Rizza Kaye C. Cases ; Renchillina Joy G. Supan ; Kia S. Anarna ; Patricia Carla A. Libo-on ; Theodore Delfin C. Vesagas ; Ma-am Joy R. Tumulak
Acta Medica Philippina 2024;58(22):65-76
BACKGROUND
As social media continue to grow as popular and convenient tools for acquiring and disseminating health information, the need to investigate its utilization by laypersons encountering common medical issues becomes increasingly essential.
OBJECTIVESThis study aimed to analyze the content posted in Facebook groups for Glucose-6-Phosphate Dehydrogenase (G6PD) deficiency and how these engage the members of the group.
METHODSThis study employed an inductive content analysis of user-posted content in both public and private Facebook groups catering specifically to G6PD deficiency. The G6PD Facebook groups with 10 or more posts within the past 12 months were selected for this study. Data were harvested from posts and comments using ExportComment.
RESULTSA total of 46 G6PD-related Facebook groups were identified. Of which, 19 were public and 27 were private groups, with an average membership of 5000-6000 accounts. After eligibility based on criteria and authorization for private groups, 3 public and 3 private groups were included, with the majority of these groups focused on sharing information. Five main themes of posted content were identified: diagnosis, management, beliefs, psychosocial factors, and medical requirements. “Diagnosis”-related posts referred to conversations about the causes and symptoms of G6PD, “management” referred to medication or diet, “beliefs” involved traditional or lay perceptions, “psychosocial factors” referred to posts that disclosed how psychosocial factors influenced G6PD deficiency practices, and “medical requirements” referred to documentation regarding the condition. The bulk of these posts used three strategies for communication: information-requesting, self-disclosure, and promotion of products/services. Information requests were the most common.
CONCLUSIONThe results of the study showed opportunities and challenges in health education on G6PD, especially in evaluating the credibility and accuracy of the information given and received. Looking at the content and manner of communicating information noted, the newborn screening program may improve its advocacy and education campaign, and may develop targeted educational materials and effective dissemination strategies that could clarify, explain, or refute information and beliefs mostly shared on these platforms.
Glucosephosphate Dehydrogenase Deficiency ; Self-help Groups ; Social Media
3.Introduction and Reflection on Novel Medical Device Regulatory Science Tool MDDT.
Yingying TENG ; Hengsong SHENG ; Yinghui LIU
Chinese Journal of Medical Instrumentation 2023;47(6):674-679
In recent years, emerging technology medical devices have developed rapidly. How to more scientifically and more efficiently regulate these novel medical devices so as to improve access to advanced medical technology while ensuring safety and effectiveness is a new challenge faced by regulatory authorities, and is also the core topic of regulatory science. New tools, new standards and new methods are important means to achieve regulatory science. "Medical Device Development Tool" proposed by the U.S. FDA is a novel medical device regulatory science tool, which can help medical device developers to predict and evaluate product performance more efficiently. It is also helpful for regulatory authorities to make regulatory decisions more efficiently. This study introduces the concept, qualification process, role of MDDT in medical device regulation and MDDT examples, and makes some discussion on the device evaluation from the perspective of reliability and validity. MDDT can facilitate the developing of novel medical device.
United States
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Medical Device Legislation
;
Reproducibility of Results
;
United States Food and Drug Administration
;
Technology
;
Device Approval
4.Introduction for One Health Joint Plan of Action (2022-2026).
Wen Jing GAO ; Chun Xiao LIAO ; Li Ming LI
Chinese Journal of Epidemiology 2023;44(4):657-661
Four organizations, including the Food and Agriculture Organization of the United Nations, the United Nations Environment Programme, WHO, and the World Organization for Animal Health, recently launched a new One Health Joint Plan of Action (2022-2026) which was the first time that the Quadripartite had issued a joint action plan on One Health. The action plan aimed to address the health challenges in the human, animal, plant, and environment, focusing on improving capabilities in six action tracks including One Health capacities, emerging and re-emerging zoonotic diseases, neglected tropical and vector-borne diseases, food safety, antimicrobial resistance and environment. This introduction will give an overview and brief translation of the background, content, and the plan's value, to help readers understand the joint action plan quickly.
Animals
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Humans
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Agriculture
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Global Health
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One Health
;
United Nations
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Zoonoses/prevention & control*
5.The role of the high-level public health school in the development of the Center for Disease Control and Prevention.
He Xiang PENG ; Si Yue WANG ; Meng Ying WANG ; Xue Heng WANG ; Meng FAN ; Huang Da GUO ; Tian Jiao HOU ; Yuan Tao HAO ; Tao REN ; Tao WU
Chinese Journal of Epidemiology 2023;44(4):662-666
The Ministry of Education and other four departments jointly issued the Notice on the Construction of high-level schools of public Health, proposing that "it will take ten years to build a number of high-level schools of public health, and form a high-quality education development system to adapt to the construction of modern public health system". At present, the construction of high-level public health schools in various universities in China is in full swing. The high-level School of Public Health and the CDC have played an important role in constructing the national public health system and the human health community. The high-level public health schools are of strategic significance and important value to the development of the CDC. The review presents reflections and insights on the role of high-level public health schools in the development of the CDC and the challenges they might face.
Humans
;
United States
;
Schools, Public Health
;
Schools
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Universities
;
Public Health
;
Centers for Disease Control and Prevention, U.S.


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