1.Summary of the best evidence for exercise management in adolescents with type 2 diabetes mellitus
Feng MIAO ; Anwei XIE ; Xuan ZHAO ; Yiming ZHANG ; Mengwei YAN ; Hongqing GUO ; Jie GU ; Wenying YAO
Chinese Journal of Modern Nursing 2024;30(9):1143-1150
Objective:To systematically retrieve, evaluate and summarize the best evidence of exercise management for adolescents with type 2 diabetes mellitus (T2DM), so as provide reference for medical and nursing staff to guide patients and their families to exercise.Methods:Clinical decisions, recommended practices, evidence summaries, guidelines, expert consensuses, and systematic reviews on exercise management of adolescents with T2DM were electronically searched on BMJ Best Practice, UpToDate, Registered Nurses' Association of Ontario, National Guideline Clearinghouse, National Institute for Health and Clinical Excellence, Scottish Intercollegiate Guidelines Network, International Society for Pediatric and Adolescent Diabetes, Medlive, Joanna Briggs Institute Evidence-Based Health Care Center Database, Cochrane Library, PubMed, Web of Science, Embase, China National Knowledge Infrastructure, WanFang Data, Chinese Biology Medicine Disc, VIP and other databases. The search period was from database establishment to March 2023. After independent literature screening and quality evaluation by two researchers, evidence was extracted, summarized, and graded based on the theme.Results:A total of 10 articles were selected, including three guidelines, three systematic reviews, three expert consensuses, and one evidence summary. Finally, 22 pieces of best evidence of exercise management for adolescents with T2DM were summarized from seven aspects, including contraindications to exercise, exercise form, exercise intensity, exercise frequency, precautions, weight loss goals, family participation.Conclusions:This study summarizes the best evidence for exercise management in adolescents with T2DM. It is recommended that clinical medical and nursing staff should carry out personalized exercise management suitable for patients based on the wishes and preferences of patients and families, actual clinical situations, and support for exercise resources.
2.Disease experience of children with transition nephrotic syndrome: a qualitative study
Xuan ZHAO ; Anwei XIE ; Feng MIAO ; Yiming ZHANG ; Zhongqin HONG ; Li CAI
Chinese Journal of Modern Nursing 2024;30(18):2403-2409
Objective:To gain a deep understanding of the disease experience of children with transition nephrotic syndrome, so as to provide a reference for developing targeted nursing measures and improving coping abilities in clinical practice.Methods:This study was a phenomenological study. From May to June 2023, a semi-structured interview was conducted using purposive sampling method to select children with transition nephrotic syndrome ( n=13) who received outpatient or inpatient treatment at Children's Hospital of Soochow University. Colaizzi 7-step method was used to analyze interview data and extract themes. Results:The disease experience of children with transition nephrotic syndrome were summarized into five themes, including inadequate disease self-management ability (lack of disease cognition and management knowledge, weak self-management awareness), excessive disease-related burden (significant academic impact, frequent adverse drug reactions, and heavy self-perceived burden), increased fear of negative evaluation, tense parent-child relationships, and growth and gain (feeling the care of others and achieving self-growth) .Conclusions:Children with transition nephrotic syndrome experience various challenges brought by growth, development, and disease, with heavy disease burden and psychological pressure. Medical and nursing staff should closely monitor children's emotional and psychological changes, value their disease experience, provide targeted psychological counseling and support in a timely manner, and reduce their adverse disease experience.
3.Psychometric properties of the Chinese version of the Pediatric Epilepsy-Specific Health-Related Quality of Life in children aged 5 to 7 years old and their parents
Yiming ZHANG ; Anwei XIE ; Xiaohua WANG ; Li TIAN ; Lu LIN ; Lihua SUN ; Feng MIAO ; Xuan ZHAO
Chinese Journal of Modern Nursing 2024;30(30):4096-4104
Objective:To translate the Pediatric Epilepsy-Specific Health-Related Quality of Life (PedsQL TM Epilepsy Module) into Chinese and test its reliability and validity in children aged 5 to 7 years old and their parents. Methods:Brislin translation model was used for forward translation, back translation, harmonization, and proofreading of the PedsQL TM Epilepsy Module. Chinese version of PedsQL TM Epilepsy Module beta version was developed through cognitive interviews, expert consultations, and pre-surveys for cross-cultural adaptation of the scale. From April to November 2023, convenience sampling was used to select 420 children with epilepsy and their parents admitted to the Children's Hospital of Soochow University as participants for a questionnaire survey to test its reliability and validity. Results:A total of 840 questionnaires were distributed (420 for children and 420 for parents), and 394 valid questionnaires were collected from children and 400 valid questionnaires were collected from parents, and the effective response rates of the questionnaires were 93.81% (394/420) and 95.24% (400/420), respectively. Chinese version of PedsQL TM Epilepsy Module (child report version) included five dimensions and 28 items. Chinese version of PedsQL TM Epilepsy Module (parent agent report version) consisted of five dimensions and 29 items. The content validity indices at the item level were 0.800 to 1.00, while the content validity indices at the scale level were 0.978 and 0.979, respectively. Exploratory factor analysis of two versions of the scale showed that five common factors were extracted, with cumulative variance contribution rates of 64.557% and 75.205%, respectively. Confirmatory factor analysis showed that the models of the two scales fitted well. The total Cronbach's α coefficients of the two scales were 0.906 and 0.914, respectively, with Cronbach's α coefficients for each dimension ranging from 0.869 to 0.991. The total test-retest reliability coefficients of the scale were 0.998 and 0.995, respectively, and the test-retest reliability coefficients of each dimension were 0.803 to 0.995. Conclusions:Chinese version of the PedsQL TM Epilepsy Module has good reliability and validity, and is suitable for evaluating the health-related quality of life of children with epilepsy aged 5 to 7 years old in China.
4.A phenomenological study on influencing factors of nursing-patient communication of junior pediatric nurses
Meiying QIAN ; Hong WANG ; Anwei XIE
Chinese Journal of Practical Nursing 2021;37(2):134-138
Objective:To explore the influencing factors of communication between pediatric junior nurses and parents of hospitalized children,and to provide basis for further improving the communication ability of junior nurses.Methods:A semi-structured interview was conducted among 10 pediatric junior nurses. Colaizzi phenomenological seven-step analysis method was used to analyze the data.NVivo10.0 software was used to manage,excavate and search text data.Results:Four themes were extracted,including self-factors,environmental factors,lack relevant training and lack of human resources.Conclusions:There are many influencing factors in the communication between nurses and parents of hospitalized children.Managers should pay attention to them by targeted training and improving communication environment, the communication ability of junior nurses can be improved,so as to improve the quality of nursing and family satisfaction.
5.Qualitative study on the factors affecting the compliance of hormone replacement therapy in children with short stature
Yuefang RONG ; Anwei XIE ; Xiaoyun XU ; Ermei MIAO
Chinese Journal of Modern Nursing 2020;26(28):3888-3893
Objective:To explore the factors affecting the compliance with hormone replacement therapy in children with short stature.Methods:Totally 14 parents of 14 children with short stature who had poor compliance with hormone replacement therapy in the Affiliated Hospital of Nantong University from August to December 2018 were selected by purposive sampling and received semi-structured interview. Colaizzi's 7-step analysis was used to analyze the data.Results:The factors affecting children's compliance with hormone replacement therapy were summarized into 4 themes, namely, parents' failure to cope with the disease, the psychological and physical problems of the children, the excessive financial burden, and the lack of humanistic care.Conclusions:The compliance with hormone replacement therapy in children with short stature is affected by many factors such as their own and social factors. Medical and nursing staff should pay special attention and provide personalized continuous care, and pay attention to humanistic care to improve their treatment compliance and achieve ideal treatment effects.
6. A qualitative research on information needs of caregivers in children with severe hand, foot and mouth disease
Meiying QIAN ; Hong WANG ; Anwei XIE
Chinese Journal of Practical Nursing 2019;35(12):933-936
Objective:
To study information needs of caregivers of children with severe hand, foot and mouth disease.
Methods:
With phenomenological method in qualitative study, semi-structured interviews were conducted on caregivers of 18 children with severe hand, foot and mouth disease. The NVivo10.0 software was used to supervise, excavate and seek data. The data were analyzed by Colaizzi analytical method.
Results:
Three themes were extracted: diversified information needs, limited access to information, look forward to other access to information.
Conclusions
Caregivers of children with severe hand, foot and mouth disease hope to obtain accurate and varied disease information, nurses should comprehensively and timely increase various sources of information so as to meet their needs and improve the quality of nursing.
7.A phenomenological study of the work experience of the new head nurse in pediatrics
Anwei XIE ; Wenying YAO ; Yuying CHAN ; Zhen YU
Chinese Journal of Practical Nursing 2018;34(30):2355-2358
Objective To explore the work experience after the change of professional role of the new head nurse in pediatrics,and to provide a basis for development of a more scientific training program in the future.Methods A total of 12 cases of pediatric new head nurses were interviewed by semistructured interview.The NVivol0.0 software was used to supervise,excavate and seek data.The data were analyzed by the Colaizzi phenomenological methodology.Results Four themes were extracted including role maladjustment,difficult to cope with stress,achievement of self growth,and expectation of the nursing department.Conclusions The new head nurse in pediatrics is under great pressure,the nursing managers should pay more attention to their growth process,provide timely support and conduct regular pre job training for them,so that they can adapt to the head nurse's positions as soon as possible,so as to ensure the quality and safety of nursing.
8.Experience of children with acute leukemia about acupoint therapy during chemotherapy: a qualitative research
Anwei XIE ; Yuying CHAN ; Wenying YAO ; Yueye XU ; Liqin REN
Chinese Journal of Practical Nursing 2017;33(30):2355-2357
Objective To explore the lived experience of children with acute leukemia about acupoint therapy during chemotherapy, so as to provide the theoretical and practice evidence for development of more scientific nursing measures. Methods Totally 14 children with acute leukemia participated in half-structured interviews regarding their experience of acupoint therapy.The NVivo 10.0 software was used to supervise, excavate and seek data.The data were analyzed by the Co1aizzi phenomenological methodology. Results Five themes were extracted including benefit sense,a sense of accomplishment of self-fulfilling, a sense of attachment to medical, sigh with emotion the magic of traditional Chinese medicine and bearable mild discomfort. Conclusions The experience of children with acute leukemiais positive feelings for the most part, nursing staff should listen to them and give corresponding nursing according to specific circumstances in order to improve the quality of nursing.
9.Influence factors for quality of life in functional dyspepsia outpatients
Xiya WANG ; Mei′e NIU ; Yi CHEN ; Anwei XIE
Chinese Journal of Modern Nursing 2017;23(9):1240-1245
Objective To investigate the influence factors for quality of life in functional dyspepsia (FD) outpatients.Methods Based on purposive sampling,268 FD outpatients from a grade III class A hospital were selected from January to June 2014. The participants were assessed by using the functional dyspepsia-related quality of life (FDDQL) scale,FD self-efficacy scale,Zung self-rating anxiety scale (SAS),and depression self-rating scale (SDS).Results The total score for FDDQL was (57.78±7.45) in the participants. FDDQL was significantly different in people with different genders or SAS scores (P<0.05) but seemed less different in people with different BMI (P>0.05). FDDQL had a positive association with gender,self-efficacy,and BMI,but had a negative association with SAS,SDS,and symptom severity (P<0.05). Thus,the risk factors appeared to include anxiety,symptom severity,course of disease,self-efficacy,and depression in FD outpatients.Conclusions FD outpatients tend to have a low quality of life and need more concerns and management. During the nursing intervention,nurses should pay more attention to the mental status such as anxiety in patients with a short course of disease,severe symptom,and/or less self-efficacy. Patients should improve their ability of self-management to achieve a higher quality of life.
10.Qualitative research on real experience of parents of children with acute leukemia in children undergoing first chemotherapy
Anwei XIE ; Yuying CHAN ; Wenying YAO ; Yueye XU ; Liqin REN
Chinese Journal of Modern Nursing 2017;23(11):1536-1538
Objective To explore the real experience of parents of children with acute leukemia in children undergoing first chemotherapy so as to provide the theoretical and practical evidence for development of individualized nursing measures.Methods A total of 16 parents with acute leukemia in children undergoing first chemotherapy were investigated using half-structured interviews via phenomenological research methods. The NVivo10.0 software was used to manage, discover and seek data. The data were analyzed using Colaizzi phenomenological method.Results Three themes including complex negative emotions, excessive economic burden and multiply needs were extracted.Conclusions Parents with acute leukemia in children undergoing first chemotherapy need more attentions. Nurses should take individualized measures to really meet their needs and reduce psychological load so as to be better with follow-up treatment of children.

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