Development of the conceptual framework for health-related quality of life in Chinese populations:A qualitative study based on the general population and patients
10.3969/j.issn.1674-2982.2024.06.001
- VernacularTitle:中国人群健康相关生命质量概念框架构建:基于一般人群与疾病患者的质性研究
- Author:
Pi-Nan CHEN
1
;
Xiao-Ning HE
;
Shi-Tong XIE
;
Jing WU
;
Kun ZHAO
;
Feng XIE
Author Information
1. 天津大学医学部药物科学与技术学院 天津 300072;天津大学社会科学调查与数据中心 天津 300072
- Keywords:
Health-related quality of life;
Conceptual framework;
Chinese population;
Qualitative study
- From:
Chinese Journal of Health Policy
2024;17(6):1-9
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the understanding on health-related quality of life(HRQoL)among the Chinese populations and to develop a HRQoL conceptual framework that can be used to guide the development of Chinese HRQoL instruments.Methods:Respondents of Chinese general population and patients populations were recruited from 31 provinces in China.One-to-one semi-structured qualitative interviews were conducted to collect the views and perceptions on HRQoL.Based on the grounded theory,multi-level coding of qualitative interviews was carried out,and the framework method was used to sort out and summarize the coding to develop the HRQoL conceptual framework in China.Results:A total of 68 respondents were included in the study.The study extracted 1 558 open coding from the qualitative interview,which were analyzed and sorted into 180 axial coding and 31 selective coding(dimensions).The HRQoL conceptual framework for the Chinese population with 6 themes was finally summarized.Conclusions:The HRQoL conceptual framework based on the health concepts and preferences of the Chinese population contains 6 themes,refers to symptoms,physical function,emotion,cognition,activities and social function.In particular,the items of appetite,sleep and fatigue identifies may reflect Chinese cultural specific perceptions on important aspects of HRQoL.
