Discussion on Data Ownership Issues in Health Science Data

VernacularTitle:卫生健康科学数据权属问题探讨
Author: Zhuyao RONG ¹ ; Xiaofeng JIA ; Zhimin HU
Author Information

1. 中国医学科学院/北京协和医学院卫生健康管理政策学院北京 100730
Keywords: scientific data; health; data rights
From: Journal of Medical Informatics 2024;45(8):8-13,19
CountryChina
Language:Chinese
Abstract: Purpose/Significance To discuss the issues of scientific data ownership in the realm of health in China,so as to provide theoretical references for the policy formulation of open sharing and flow of scientific data.Method/Process By exploring data rights based on data types,the study preliminarily constructs a data rights system,proposes a data rights distribution model,and examines the rights transfer process from the perspective of the data value chain.Result/Conclusion A rights system centered on data property rights,personal rights and regulatory rights is established.An"inherent rights+transferable rights"data rights distribution model is proposed and it has been implemented within the data value chain.