Qualitative research on disease experiences of women with endometriosis:a meta-synthesis
10.3969/j.issn.1672-8467.2024.05.012
- VernacularTitle:子宫内膜异位症患者疾病体验质性研究的Meta整合
- Author:
Xing-Ting XIAO
1
;
Yue CAO
;
Yun-Xi ZHENG
;
Xiao-Fang YI
;
Ji-Hua HUANG
Author Information
1. 复旦大学附属妇产科医院护理部 上海 200011
- Keywords:
endometriosis(EMs);
disease experiences;
qualitative research;
meta-synthesis
- From:
Fudan University Journal of Medical Sciences
2024;51(5):725-735
- CountryChina
- Language:Chinese
-
Abstract:
Objective To understand the disease experiences of women with endometriosis(EMs),so as to provide a basis for improving the diagnosis,treatment,nursing and support of this population.Methods The databases of PubMed,Web of Science,Scopus,Embase,Cochrane Library,VIP,Wanfang Data,CNKI,CBM were retrieved on qualitative research about the disease experiences of endometriosis patients from inception to Jun 2023.The quality of the literature was evaluated by Joanna Briggs Institute(JBI)Critical Appraisal Tool for qualitative studies.Results A total of 17 studies were included,51 clear research findings were extracted,which were summarized into 10 new categories and 3 integrated results:(1)Cyclical episodes of the disease not only bring physical and psychological distress,but also lead to decreasing the patient's sense of female identity,destroying social and intimating relationships;(2)The doctor and patient interaction is influenced by imbalance of cognitive,the process of diagnosis and treatment is full of challenges,and patients have a demand for professional information and social support;(3)Growing up in pain,patients actively self-adjust and positively cope with the disease.Conclusion EMs affects patients'quality of life physiologically and psychologically,with prevalent issues of delayed diagnosis and repeated treatments.The professional information supported by health professionals needs to be improved.Healthcare providers should pay more attention to patients'physical and emotional experiences in their clinical work,improve their informal support,participate in long-term management,and improve patients'ability to manage their diseases.
