1.Measuring hepatitis B-related stigma: A systematic review of questionnaire-based studies.
Jaconiah Shelumiel T. MANALAYSAY ; Diego Nathaniel D. MINA ; Brian Arth M. URBANO ; Cathlyn B. GERALDO ; Josephine D. AGAPITO ; Janus P. ONG ; Joana Ophelia M. REAL ; Hilton Y. LAM
Acta Medica Philippina 2025;59(14):89-104
BACKGROUND AND OBJECTIVE
Stigma remains a profound barrier to public health, particularly in managing diseases such as Hepatitis B, which is highly prevalent in hyperendemic regions like the Philippines. The social stigma associated with such health conditions can severely limit access to care and hinder adherence to treatment, exacerbating the overall disease burden. Despite the critical impact of stigma on health outcomes, there is a notable gap in the systematic evaluation of the tools used to measure stigma related to health conditions like Hepatitis B. This study aims to fill this gap by reviewing existing instruments for their methodologies, reliability, and validity to inform the development of a refined tool tailored to the Philippine context.
METHODSA systematic search was conducted across six databases, including PubMed, Cochrane Database of Systematic Reviews, Open Grey, DissOnline, Philippine Health Research Registry (PHRR), and Health Research and Development Information Network (HERDIN), following PRISMA guidelines. The search strategy focused on identifying quantitative and mixed-methods studies using questionnaires to measure HBV-related stigma and discrimination. Studies published between January 1, 1992, and December 31, 2023, were considered. The selection process involved screening for duplicates, reviewing titles and abstracts, and performing a full-text review based on predetermined eligibility criteria.
RESULTSThe initial search yielded 1,198 articles, with 24 duplicates removed. After title and abstract screening, 28 articles were considered for full-text review, resulting in 17 relevant articles in the final analysis with 15 unique instrumentations. The majority of studies employed cross-sectional designs (n=8), with a significant concentration in Asian countries (n=11), indicating a regional focus in HBV stigma research. The review identified a range of questionnaire methodologies, but most studies lacked specificity regarding the type of stigma measured. The Likert Scale was the most commonly used measurement tool, yet few studies provided cut-off values for stigma levels. Validity and reliability testing was reported in 12 articles, including pilot studies, Cronbach’s alpha, and factor analysis.
CONCLUSIONThe lack of a universal methodology and specificity in existing instruments underscores the importance of developing a refined tool that can accurately capture the nuances of stigma and discrimination associated with HBV. The urgent need for standardized, reliable, and culturally sensitive questionnaires is evident, underscoring their importance in developing effective public health strategies and improving treatment outcomes for individuals living with HBV, especially in the Philippines.
Human ; Social Stigma ; Hepatitis B, Chronic ; State-of-the-art Review ; Review Literature As Topic
2.External stigma in patients with visible skin diseases: A qualitative study.
Hongjin GUAN ; Zhongling LUO ; Yehong KUANG ; Yi XIAO ; Minxue SHEN
Journal of Central South University(Medical Sciences) 2025;50(3):373-381
OBJECTIVES:
Most dermatological conditions fall under visible skin diseases (VSDs), where lesions are exposed and readily seen, increasing patients' risk of experiencing external stigma from the public and specific professional groups (e.g., service providers). This stigma imposes psychological and social burdens that far exceed the psychological symptoms of the disease. To date, no systematic research has been conducted in China specifically on the external stigma associated with VSDs. Taking psoriasis, vitiligo, and acne as representative conditions, this study aims to explore the external stigma experienced by VSD patients across various social settings and to provide a scientific foundation for the development of measurement tools, quantitative research, and targeted interventions.
METHODS:
A purposive sample of 23 outpatients diagnosed with psoriasis, acne, or vitiligo was recruited from the Xiangya Hospital Dermatology Clinic of Central South University between December 2023 and July 2024. In-depth qualitative interviews were conducted. Data were analyzed using Mayring's qualitative content analysis and thematic analysis. Reporting followed the Consolidated Criteria for Reporting Qualitative Research guidelines. The interviews focused on the experience of external stigma across different social settings.
RESULTS:
Patients with VSDs reported experiencing external stigma in various contexts including family, community, recreational service venues, healthcare institutions, and others. The main motivation behind stigmatizing behaviors was disease avoidance (e.g., fear of contagion, aversion, social distancing). Stigmatization in school settings was also reported by patients with all 3 types of VSDs. Psoriasis patients reported stigma across all examined scenarios, while vitiligo and acne patients reported stigma in only some contexts.
CONCLUSIONS
Patients with VSDs experience significant external stigma, with psoriasis patients facing a higher burden compared to those with vitiligo or acne. The predominant stigma-driving factor is the public's desire to avoid disease, which underscores the need for public education to correct misconceptions about VSDs. External stigma from family, school, social networks, healthcare providers, and structural stigma should be the focus of policy and intervention efforts aimed at protecting the rights and well-being of patients with VSDs.
Humans
;
Social Stigma
;
Female
;
Male
;
Qualitative Research
;
Acne Vulgaris/psychology*
;
Skin Diseases/psychology*
;
Adult
;
Psoriasis/psychology*
;
Vitiligo/psychology*
;
Middle Aged
;
China
;
Young Adult
3.Association between stigma and quality of life in community-dwelling patients with schizophrenia: Multiple mediating roles of anxiety and depression symptoms.
Yue CHEN ; Xiaoyan WAN ; Qin YANG ; Changjiu HE ; Xuanyi HU ; Xiang LIU ; Yuanyuan LIU
Journal of Central South University(Medical Sciences) 2025;50(6):1042-1051
OBJECTIVES:
Stigma is common among community-dwelling patients with schizophrenia and has a profound negative impact on both psychiatric symptoms and quality of life. This study aims to explore the association between stigma and quality of life in this population and to examine the multiple mediating roles of anxiety and depression symptoms.
METHODS:
The multi-stage stratified cluster random sampling method was used to select the community-dwelling patients with schizophrenics in Chengdu, Sichuan Province, China. The questionnaire included general demographic characteristics, stigma question, the Generalized Anxiety Disorder-7 (GAD-7) scale, the Patient Health Questionnaire-9 (PHQ-9), and the 12-item Short Form Health Survey (SF-12). The SF-12 was used to measure quality of life, including physical health and mental health dimensions. A multiple mediation model was used to analyse the mediating effects of anxiety and depression symptoms together between stigma and quality of life.
RESULTS:
A total of 1 087 community patients with schizophrenia were included with a mean age of 50.68±12.73 years; 525 (48.30%) were male. Stigma was reported by 543 patients (49.95%). Anxiety symptoms were present in 292 patients (26.86%), and depression symptoms in 407 patients (37.44%). The physical health quality of life score was 72.01 ± 20.99, and the mental health quality of life score was 71.68 ± 19.38. Multiple mediation analysis showed that stigma directly affected quality of life, and also indirectly affected quality of life through anxiety and depression symptoms. Anxiety and depression jointly mediated 42.26% of the total effect of stigma on physical health quality of life and 47.51% on mental health quality of life.
CONCLUSIONS
Reducing stigma and preventing anxiety and depression symptoms in community-dwelling patients with schizophrenia can effectively improve their quality of life and support reintegration into society.
Humans
;
Quality of Life
;
Male
;
Depression/psychology*
;
Middle Aged
;
Social Stigma
;
Schizophrenia
;
Female
;
Anxiety/psychology*
;
China
;
Surveys and Questionnaires
;
Adult
;
Schizophrenic Psychology
;
Independent Living
;
Aged
4.Stakeholder perceptions towards a mobile application for community-led monitoring of tuberculosis services in Metro Manila, Philippines: A qualitative study.
Reiner Lorenzo J. Tamayo ; Paulene Faye C. Choi ; Kathleen Nicole T. Uy ; Christian Sergio Biglaen ; Jason V. Alacapa
Acta Medica Philippina 2024;58(18):27-34
OBJECTIVE
To determine the perceptions of persons with tuberculosis (TB) and health workers on Care TB – a mobile application for the community-led monitoring (CLM) of TB services.
METHODSWe used a qualitative research method. Six people with tuberculosis and ten health workers were chosen through purposive sampling for semi-structured interviews. The narrative data produced from the interviews were subjected to qualitative content analysis in order to uncover salient themes and patterns.
RESULTSThe community-led monitoring mobile application was shown to be acceptable both to TB healthcare providers and patients. It enhances information access and streamlines the process of reporting care barriers. The application also allows persons with TB to interact with one another, potentially eliminating stigma and discrimination. Potential challenges to implementing the CLM program include issues with internet connectivity, costs, and human resources.
CONCLUSIONThis study provides preliminary evidence of the acceptability and perceived feasibility of a mobile application for the community-led monitoring of TB services. For the CLM initiative to be scaled up across the country, more financial and technical support is required.
Tuberculosis ; Patient Acceptance Of Health Care ; Human Rights ; Social Stigma ; Social Discrimination
5.Knowledge, attitudes, and practices of barangay health workers in Marawi City regarding Hansen’s disease.
Aznaida T. Pandapatan ; Belen L. Dofitas ; Mia Katrina R. Gervasio ; Jolene Kristine G. Dumlao
Acta Medica Philippina 2024;58(17):8-16
OBJECTIVE
To assess the knowledge, attitudes, and practices of Barangay Health Workers (BHWs) in Marawi City regarding Hansen’s Disease (HD).
METHODSA cross-sectional study was conducted among the Barangay Health Workers of Marawi City. This study was conducted in two phases. Phase 1 was questionnaire development where the knowledge, attitudes, and practices (KAP) questionnaire was formulated and administered to six Barangay Health Workers for pre-testing. Phase 2 of the study included the survey and focus group discussion (FGD). A questionnaire comprising of 27 questions was administered to BHWs to assess knowledge, attitude, and practices regarding HD.
RESULTSA total of 49 BHWs underwent the Phase 2 survey and six BHWs joined the FGD. The mean age of all the survey participants was 34.9 ± 19.3 years. Among the 49 participants, 40 (81.6%) were females. The knowledge of BHWs was found to be adequate only in six (12%) BHWs. Positive attitude was observed in 12 (24.5%) and adequate practices regarding HD were observed in 33 (67.3%) BHWs. First-hand experience of diagnosing HD patients was significantly associated with adequate knowledge (p < 0.001) and positive attitude of BHWs (p < 0.001). There was a significant association between > 5 years of experience as BHWs (p = 0.027) and first-hand experience in diagnosing leprosy (p = 0.005) with adequate practices of BHWs regarding HD. In the FGD, BHWs expressed their lack of training which highlighted the need for refresher courses on HD.
CONCLUSIONKnowledge about HD is low among Marawi BHWs due to their inadequate training. The attitudes and practices of BHWs are also affected because of deficient knowledge regarding etiology and transmission of HD. There is a need for adequate training and refresher courses on HD to increase the knowledge of BHWs regarding HD.
Leprosy ; Knowledge ; Attitude ; Health Personnel ; Healthcare Workers ; Social Stigma
6.Mediating role of partner's dyadic coping in improving the stigma and quality of life of the patients with premature ejaculation.
Jing XU ; Zhi-Ping WU ; Wen-Li LIU ; Wen-Jin ZHANG
National Journal of Andrology 2024;30(12):1117-1121
OBJECTIVE:
To explore the mediating role of the partner's dyadic coping in improving the stigma and quality of life (QOL) of the patient with premature ejaculation (PE).
METHODS:
We selected 480 PE patients seeking medical care in the clinic of urology and andrology from January to June 2023 by convenience sampling. Using a General Information Questionnaire, Dyadic Coping Inventory, Social Impact Scale, and Short-Form 12 Quality of Life Scale, we conducted an investigation among the patients and analyzed the mediation effect of the partner's dyadic coping on the patients' stigma and QOL.
RESULTS:
The mean scores on the partner's dyadic coping and the patients' stigma and QOL were (68.58±14.96), (47.67±30.13) and (90.18±28.93), respectively, with a significant correlation between the partner's dyadic coping and the patients' stigma and QOL (P<0.01). And the partner's dyadic coping was found to have an evident mediating role in improving the stigma and QOL of the patients, with a mediation effect of 36.38% of the total effect.
CONCLUSION
The QOL of the PE patients is at a below-average level, and the partner's dyadic coping plays a mediating role in improving the stigma and QOL of the patients. Design of dyadic coping-related intervention plans is recommended to improve the partner's dyadic coping, reduce the stigma of the patients and increase their QOL.
Humans
;
Quality of Life
;
Male
;
Adaptation, Psychological
;
Premature Ejaculation/psychology*
;
Surveys and Questionnaires
;
Sexual Partners/psychology*
;
Social Stigma
;
Adult
;
Middle Aged
7.A study on the knowledge, attitude and behavior regarding mental health of residents in a selected barangay
Richard Dean Clod C. Dela Cruz ; Kelvin Michael G. Dela Cruz ; Micah Jeanne A. Dela Rosa ; Maria Kristina P. Descalzo ; Andrew Carlo F. Dioso ; Angelica Mae Camille P. Dizon ; Ellen Stephanie M. Dizon ; Vince Gabriel B. Dulay ; Justine William T. Duran ; Felicitas Asuncion C. Elago ; Nicole Pauline L. Ereñ ; o ; Angela B. Escobia ; Karl Lorenzo Miguel M. Escovidal ; Miraflor A. Espeleta ; Franciosa Gavino-Collins
Health Sciences Journal 2020;9(2):53-59
INTRODUCTION:
Stigmatizing attitudes are barriers to treatment of mental health disorders. The burden
of stigma has not been established locally. This study aimed to assess the stigma in the community by
determining the knowledge, attitudes and behaviors of barangay residents towards mental health and
persons with mental health illness.
METHODS:
A total of 422 participants were included using convenience sampling. Participants were given
self-administered questionnaires that consisted of the Mental Health Knowledge Schedule (MAKS),
Community Attitudes Towards the Mentally Ill (CAMI), and Reported and Intended Behavior Scale (RIBS)
tools. The mean scores and percentages were computed and compared across the sociodemographic data of the respondents.
RESULTS:
Knowledge levels were relatively high with a mean score of 26.63. Depression, stress, bipolar
disorder and drug addiction were recognized as mental illnesses by the majority of the participants.
Scores in the stigmatizing ideologies authoritarianism (3.07) and social restrictiveness (2.58) were low,
while the positive ideologies benevolence (3.76) and community health ideology (3.85) had higher scores. Participants were reluctant to work with mentally-ill people (3.18) but were willing to be friends with them (3.87).
CONCLUSION
This study concludes that the respondents were generally knowledgeable about mental health illness. There was a general acceptance and less stigmatizing attitude, and a willingness to interact with people with mental illness.
psychiatry
;
Mental health
;
Social Stigma
8.Effects of Self-Assertive Training Applying Reality Therapy Techniques on Self-esteem and Internalized Stigma in Schizophrenia Patients
Journal of Korean Academy of Psychiatric and Mental Health Nursing 2019;28(1):37-49
PURPOSE: The aim of this study was to examine the effect of self-assertive training applying the reality therapy techniques (SATART) on self-esteem and internalized stigma of schizophrenia patients. METHODS: This study was a non-equivalent control group pretest-posttest design and enrolled 55 people with schizophrenia (experimental group=27, control group=28) from two community mental health centers. The SATART was offered twice a week for 6 weeks in a total 12 sessions. Data were collected from February to April, 2017, using the Korean version of the Internalized Stigma of Mental Illness Scale and Rosenberg Self-Esteem Scale. The collected data was analyzed using χ2 test, independent t-test, one-way ANCOVA, and repeated measures ANOVA with using the SPSS/WIN 22.0 program. RESULTS: The experimental group showed significant improvements in self-esteem and recudction of internalized stigma compared to the control group. However, there was no significant improvement on stigma resistance measurement among the subscales of internalized stigma between two groups. CONCLUSION: The findings indicate that the SATART program is effective and could be recommended as a psychosocial intervention for self-esteem enhancement and internalized stigma reduction of people with schizophrenia.
Assertiveness
;
Community Mental Health Centers
;
Humans
;
Reality Therapy
;
Schizophrenia
;
Self Concept
;
Social Stigma
9.The Mediating Effects of Self-Esteem and Resilience on the Relationship Between Internalized Stigma and Quality of Life in People with Schizophrenia
Asian Nursing Research 2019;13(4):257-263
PURPOSE: This study examined the mediating effects of self-esteem and resilience on the relationship between internalized stigma and quality of life in people with schizophrenia.METHODS: The participants were 123 people with schizophrenia (mean age = 41.87 years; 62.6% men) recruited from Soonchunhyang university hospital, a mental health center, and daytime rehabilitation facilities located in Seoul and Gyeonggi Province in South Korea. Using a cross-sectional survey, participants completed structured questionnaires with psychometric adequacy. The regression method of Baron and Kenny was used to test the mediating effects of self-esteem and resilience on the relationship between internalized stigma and quality of life.RESULTS: Self-esteem and resilience were found to be full and partial mediators, respectively, in the relationship between internalized stigma and quality of life.CONCLUSION: The findings of this study imply that effective future intervention strategies should target improvements in self-esteem and resilience to reduce the negative impact of internalized stigma on the quality of life of people with schizophrenia.
Cross-Sectional Studies
;
Gyeonggi-do
;
Korea
;
Mental Health
;
Methods
;
Negotiating
;
Psychometrics
;
Quality of Life
;
Rehabilitation
;
Resilience, Psychological
;
Schizophrenia
;
Seoul
;
Social Stigma
10.Developing a Prediction Model for Family Health in Families of Patients with Schizophrenia
Kuem Sun HAN ; Yeong Seon HONG ; Hyuncheol KANG ; Youn Hee ROH ; Myung Sook CHOI ; Hee Jin MOON
Journal of Korean Academy of Psychiatric and Mental Health Nursing 2019;28(4):309-320
PURPOSE: The purpose of this study was to identify factors related to family health and develop a prediction model with an ability to explain family health in families of patients with schizophrenia.METHODS: A hypothesized model with twelve pathway forms was developed based on literature review. Family stress and social stigma were included as two exogenous variables; whereas family resilience, family empowerment, self-esteem, community integration, and family health were included as endogenous variables. Data were collected using a self-report questionnaire from 206 families of patients with schizophrenia living in Republic of Korea. Data were analyzed with PASW/WIN 18.0 and AMOS 18.0 programs.RESULTS: Social stigma had a negatively indirect and total effect on family health. Family resilience, self-esteem, and community integration had positive and direct and overall effects on family health.CONCLUSION: A prediction model for families of patients with schizophrenia is proposed and social stigma, family resilience, self-esteem, and community integration are presented as predicting factors for family health. Nursing interventions and support programs should be developed to overcome social stigma and improve family resilience, self-esteem, and community integration.
Community Integration
;
Family Health
;
Humans
;
Nursing
;
Power (Psychology)
;
Republic of Korea
;
Schizophrenia
;
Social Stigma


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