1.Covid-19 perception and self reported impact of pandemic on Parkinson’s disease symptoms of patients with physically independent Parkinson’s disease
Bahar SAY ; Betü ; l Ö ; ZENÇ ; ; Ufuk ERGÜ ; N
Neurology Asia 2020;25(4):485-491
Objective: The novel coronavirus disease 2019 (Covid-19) pandemic has affected many people
with chronic diseases, including Parkinson’s disease (PD). We aimed to investigate the perception
of Covid-19 and the self-reported impact of the pandemic on PD symptoms of a group of patients
with physically independent PD from Turkey. Methods: We applied a questionnaire to idiopathic PD
patients aged ≥65 years, who did not have known dementia, who were physically independent and
who had at least one visit in the year before the telephone interview. The study patients were selected
from the medical records of two different centers in Kirikkale, Turkey. Two neurologists conducted
a semi-structured telephone interview to evaluate the perception of Covid-19 and new or worsening
PD symptoms after the home quarantine. Results: In total, 86 patients were included in the study.
Although most of the patients (97.7%) knew of Covid-19, knowledge of the Covid-19 symptoms was
moderate (54.7%). Most patients reported that they washed their hands often (100%) and wore a mask
(98.8%); 76 (88.4%) of them stayed at home. Compliance with other preventive measures was above
80%. In total, 40 (46.5%) patients (28 male, 12 female) reported worsening bradykinesia. Fatigue
(24.4%), daytime sleepiness (20.9%), pain (20.9%) and anxiety (15.2%) were the most common new
or worsening non-motor symptoms.
Conclusions: The Covid-19 knowledge in a group of patients with PD from Turkey can be considered
adequate. They have a high compliance with preventive measures. However, reduced non-exercise
physical activity due to the pandemic affected both their motor symptoms and non-motor symptoms.
2.Reliability and validity of the Turkish version of Parkinson’s Disease Sleep Scale
Bahar Say ; Tuğba Tunç ; ; ³ ; Levent Ertuğrul İnan
Neurology Asia 2019;24(1):41-48
Objective: The aim of this study was to determine the reliability and validity of the Parkinson’s
Disease Sleep Scale (PDSS)-Turkish version. 48 patients with idiopathic Parkinson’s disease and
48 healthy controls were included in this cross-sectional study. The patients’ Unified Parkinson’s
Disease Rating Scale (UPDRS), Hoehn-Yahr Stage (HYS), and the drugs were recorded. Mini-Mental
State Examination was performed in the study population. The professional translation of the PDSS
(English to Turkish and Turkish to English) was done by a neurologist and a language educator who
was a native English speaker and well versed in Turkish, and it was approved by a certified translation
agency as well. PDSS and Epworth Sleep Scale (ESS) tests were performed to 96 subjects. PDSS
was repeated 15 days later.
Conclusions: The scale was found to be reliable by the first and second assessment of PDSS to 96
subjects (Cronbach’s alpha= 0.721 and 0.77). Intra-class correlation coefficient (ICC) 90%, was found
to be high. A statistically significant negative correlation was found between the total ESS and the total
PDSS scores when tested in the 96 cases included in the study (rs = -0.306, p = 0.02; rs = -0.340 p
= 0.01, respectively). PDSS was found to be reliable and valid in our study with Parkinson’s patients
who were monitored at our outpatient clinic.

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