1.Dietary Application for the Management of Patients with Hemodialysis: A Formative Development Study
Cosette FAKIH EL KHOURY ; Mirey KARAVETIAN ; Ruud J G HALFENS ; Rik CRUTZEN ; Dayana EL CHAAR ; Jos M G A SCHOLS
Healthcare Informatics Research 2019;25(4):262-273
OBJECTIVES: To describe the step-by-step person-centered, theory-based development of the KELA.AE app for Arabic speaking hemodialysis patients. METHODS: A step-by-step person-driven theory-based approach was conducted to develop a self-monitoring and educational dietary app for hemodialysis patients. The development follows the Integration, Design, Assessment, and Sharing (IDEAS) framework. Qualitative, semi-structured interviews with 6 hemodialysis patients and 6 healthcare practitioners (dietitians and nephrologists) were performed to assess the need for an app, the willingness to use an app, and features desired in an app. RESULTS: The KELA.AE app, which includes a self-monitoring feature, CKD-friendly recipes, and a theory-based, evidence-based educational feature was developed. Qualitative analysis of interviews revealed two predominant themes from patient interviews ‘Experience with the diet’, ‘App evaluation’, and one theme from interviews with healthcare practitioners ‘App evaluation’. Patients expressed frustration with current accessibility of dietary information along with the need for educational materials in the app. The review of the KELA.AE prototype was positive overall, and patients reported a willingness to use the app. Healthcare practitioners considered the app accurate, simple, and culturally sensitive but expressed concerns about app misuse and the replacement of healthcare practitioners. CONCLUSIONS: The KELA.AE app was found to be satisfactory and supportive of the participants' needs. Changes were made to the app as suggested during the interviews.
Arabs
;
Delivery of Health Care
;
Diet
;
Frustration
;
Health Behavior
;
Humans
;
Kidney Failure, Chronic
;
Mobile Applications
;
Renal Dialysis
;
Telemedicine
2.Optimizing the multidimensional aspects of the patient-physician relationship in the management of inflammatory bowel disease.
Deborah CHEW ; Wong ZHIQIN ; Norhayati IBRAHIM ; Raja Affendi Raja ALI
Intestinal Research 2018;16(4):509-521
The patient-physician relationship has a pivotal impact on the inflammatory bowel disease (IBD) outcomes. However, there are many challenges in the patient-physician relationship; lag time in diagnosis which results in frustration and an anchoring bias against the treating gastroenterologist, the widespread availability of medical information on the internet has resulted in patients having their own ideas of treatment, which may be incongruent from the treating physicians’ goals resulting in patient physician discordance. Because IBD is an incurable disease, the goal of treatment is to sustain remission. To achieve this, patients may have to go through several lines of treatment. The period of receiving stepping up, top down or even accelerated stepping up medications may result in a lot of frustration and anxiety for the patient and may compromise the patient-physician relationship. IBD patients are also prone to psychological distress that further compromises the patient-physician relationship. Despite numerous published data regarding the medical and surgical treatment options available for IBD, there is a lack of data regarding methods to improve the therapeutic patient-physician relationship. In this review article, we aim to encapsulate the challenges faced in the patient-physician relationship and ways to overcome in for an improved outcome in IBD.
Anxiety
;
Bias (Epidemiology)
;
Communication Barriers
;
Diagnosis
;
Frustration
;
Humans
;
Inflammatory Bowel Diseases*
;
Internet
3.Parenting Experience of Mother of Teenage Girls with Conduct Disorder: A Parse's Method Study.
Journal of Korean Academy of Psychiatric and Mental Health Nursing 2017;26(1):36-45
PURPOSE: The aim of this study was to identify the parenting experience of mothers who have teenage girls with conduct disorders and to identify the meaning and structure of their experiences. METHODS: This study was a qualitative research based on Parse's research method. Participants were 9 mothers who had a daughter diagnosed with conduct disorder at a community hospital in the central region of South Korea. RESULTS: The core concept on the parenting experiences of mothers of teenage girls with conduct disorder were survival against a violent environment, a sense of guilt related to the conduct disorder, confusion and frustration concerning mother's role, and hope for the future. The experiences of these mothers can be defined as the process of human becoming with powering and transforming while connecting-separating and enabling-limiting with valuing. CONCLUSION: This research is expected to contribute to understanding of mothers' suffering and struggling and be useful in developing nursing care for clients with conduct disorder and their mothers.
Adolescent
;
Conduct Disorder*
;
Female*
;
Frustration
;
Guilt
;
Hope
;
Hospitals, Community
;
Humans
;
Korea
;
Methods*
;
Mothers*
;
Nuclear Family
;
Nursing Care
;
Parenting*
;
Parents*
;
Qualitative Research
4.The Effects of Health Behavior and Health Status on Heath-related Quality of Life in Older People: Gender Analysis by using the 2012 Korea Health Panel Data.
Journal of Korean Academy of Community Health Nursing 2017;28(2):118-128
PURPOSE: The purpose of this study is to measure health-related quality of life (HRQoL) and to investigate the affecting factors according to gender in older adults by using the 2012 Korea Health Panel data. METHODS: The Korea Health Panel data 2012 were collected from February to August 2012 by Korea Institute for Health and Social Affairs and National Health Insurance Corporation and the number of respondents were 1,921. The data were analyzed by t-test, chi-square, Pearson correlation coefficient and multiple regression using SPSS/WIN program. RESULTS: The limitation of activity was the most influential factor for health-related quality of life of both male and female. For male, the affecting factors on HRQoL were hearing problems and frustration. For female, the affecting factors on HRQoL were eating problems, depression and suicidal impulses. Drinking, moderate physical activities, vision problems and stress had a significant effect on HRQoL for both male and female. CONCLUSION: Health care providers should consider the differences between male and female when they design a program in order to improve HRQoL of older people.
Adult
;
Depression
;
Drinking
;
Eating
;
Female
;
Frustration
;
Health Behavior*
;
Health Personnel
;
Hearing
;
Humans
;
Korea*
;
Male
;
Motor Activity
;
National Health Programs
;
Quality of Life*
;
Surveys and Questionnaires
5.Therapeutic Misconception in Psychiatry Research: A Systematic Review.
Ivan S K THONG ; Meng Yee FOO ; Min Yi SUM ; Benjamin CAPPS ; Tih Shih LEE ; Calvin HO ; Kang SIM
Clinical Psychopharmacology and Neuroscience 2016;14(1):17-25
Therapeutic misconception (TM) denotes the phenomenon in which research subjects conflate research purpose, protocols and procedures with clinical treatment. We examined the prevalence, contributory factors, clinical associations, impact, and collated solutions on TM within psychiatric research, and made suggestions going ahead. Literature search for relevant empirical research papers was conducted until February 2015. Eighty-eight reports were extracted, of which 31 were selected, summarised into different headings for discussion of implications and collated solutions of TM. We found variable and high rates of TM (ranging from 12.5% to 86%) in some psychiatry research populations. Contributory factors to TM included perceived medical roles of researchers, media, research setting and subject factors. Greater TM in affective, neurodevelopmental and psychotic spectrum conditions were associated with demographic variables (such as lower education, increased age), clinical factors (such as poor insight, cognitive deficits, increased symptoms, poorer self-rated quality of health), and social functioning (such as decreased independence). Inattention to TM may lead to frustration, negative impression and abandonment of participation in psychiatry research. Strategies such as the employment of a neutral educator during the informed consent process and education modules may be effective in addressing TM. Further research is warranted to examine the different TM facets, specific clinical correlates and more effective management strategies.
Affective Disorders, Psychotic
;
Education
;
Empirical Research
;
Employment
;
Frustration
;
Head
;
Humans
;
Informed Consent
;
Prevalence
;
Research Subjects
;
Therapeutic Misconception*
6.The impact of dialysis-requiring kidney disease on family quality of life: A descriptive study.
The Filipino Family Physician 2016;54(3):142-150
BACKGROUND: The alarming increase in prevalence of dialysis-requiring kidney disease is a major health concern in the country. With more patients undergoing dialysis, more families are also exposed to the stresses of caregiving. The aim of this study was to investigate the impact of dialysis-requiring kidney disease on the quality of life of the patient's family. Information on the magnitude and areas of impact is essential in developing strategies to support the family.
METHODS: Data were obtained from pre-tested, structured, close ended questionnaires completed by 60 family members of kidney disease patients on dialysis at Holy Child Hospital from October 16 to November 30, 2015. Analysis was carried out using the GNU PSPP software.
RESULTS: Most family members were female (77%), the spouse of the patient (34%) or the child (30%), and living with the patient (70%). Eighty-nine percent were directly involved in patient care; 55% held the role of the main caregiver. Ten key themes were investigated and the areas of negative impact by magnitude are: Emotional Impact (100%) citing worry, stress, and frustration; Financial Impact (100%) citing medical bills as the most burdensome; Family Relationships (82%) citing increased stress and tension; Sleep & Health (64%) citing sleep loss from having to wake to assist the patient; Daily Activities (63%) seeing caregiving as a burden; Social Life (58%) citing guilt feeling as a hindrance to socialization; Time Planning (57%) with the unpredictability of the patient's symptoms being the main cause of not being able to make plans; Holidays (48%) blaming appointments for not being able to go on vacation; Work & Study (43%) citing lack of focus; and Support & Medical Care (42%) citing lack of support from other family members. Positive effects were also identified with 90% reporting strengthened personal relationship with the family, 83% having more awareness of their diet, 80% having strengthened faith, and 77% noting a closer family as a result. Relationships between these themes were discussed.
CONCLUSION: As revealed, dialysis-requiring kidney disease has several negative impacts on the quality of life of involved families. If left neglected, the family, instead of being a resource in patient care, may become a barrier. Strategies to employ the positive effects as enablers in managing the areas of negative impact must be developed to provide appropriate support for the patient and the family unit.
Human ; Male ; Female ; Middle Aged ; Young Adult ; Kidney ; Dialysis ; Caregivers ; Emotions ; Family ; Family Relations ; Frustration ; Guilt ; Kidney Diseases ; Patient Care ; Prevalence ; Quality Of Life ; Renal Dialysis ; Socialization ; Spouses ; Surveys And Questionnaires
7.Survey for Musculoskeletal Pain of Korean Junior Tennis Players.
Joon Yub KIM ; Seung Jun MOON ; Jeong Hyun YOO ; Joo Hak KIM ; Dong Wook SOHN ; Jae Hong JUNG ; Woo Sung KIM
The Korean Journal of Sports Medicine 2015;33(2):83-87
The aim of this survey was to analyze the characteristics of musculoskeletal pain of Korean junior tennis players and its effect on games and psychology of players. Surveys were administered to 30 healthy male junior tennis players who took part in a 50th national junior tennis meet in 2015. We analyzed the incidence, location, cause and preferred prevention or treatment method of musculoskeletal pain, the correlation between training time and musculoskeletal pain as well as the effect of musculoskeletal pain on games and psychology of players. Overall, 22 out of 30 (73.3%) responded the experience of musculoskeletal pain. The incidence of lower extremity pain (16 out of 30, 53.3%) were higher than upper extremity pain (9 out of 30, 30%) and low back pain (8 out of 30, 26.7%). The long training hours per day (r=0.574, p=0.001) and old age (r=0.390, p=0.033) were correlated with intermittent back pain in univariate anlaysis. In multivariate ananlysis, the long training hours per day was a single risk factor of intermittent low back pain (p=0.038, odds ratio 10.01). 43.3% of players responded that the insufficent preventive conditioning program was thought to be the cause of musculoskeletal pain. The most preferred treatment or prevention method for musculoskeletal pain was rehabilitation (55.3%). Twelve players reported the negative affection of musculoskeletal pain to the performance in game. Six players experienced the frustration, 9 players experienced the loss of interest and 9 players experienced the emotional avoidance of games due to the musculoskeletal pain.
Adolescent
;
Athletic Injuries
;
Back Pain
;
Frustration
;
Humans
;
Incidence
;
Low Back Pain
;
Lower Extremity
;
Male
;
Musculoskeletal Pain*
;
Odds Ratio
;
Psychology
;
Rehabilitation
;
Risk Factors
;
Tennis*
;
Upper Extremity
8.Role of Principal Ionotropic and Metabotropic Receptors in Visceral Pain.
Pradeep KANNAMPALLI ; Jyoti N SENGUPTA
Journal of Neurogastroenterology and Motility 2015;21(2):147-158
Visceral pain is the most common form of pain caused by varied diseases and a major reason for patients to seek medical consultation. It also leads to a significant economic burden due to workdays lost and reduced productivity. Further, long-term use of non-specific medications is also associated with side effects affecting the quality of life. Despite years of extensive research and the availability of several therapeutic options, management of patients with chronic visceral pain is often inadequate, resulting in frustration for both patients and physicians. This is, most likely, because the mechanisms associated with chronic visceral pain are different from those of acute pain. Accumulating evidence from years of research implicates several receptors and ion channels in the induction and maintenance of central and peripheral sensitization during chronic pain states. Understanding the specific role of these receptors will facilitate to capitalize on their unique properties to augment the therapeutic efficacy while at the same time minimizing unwanted side effects. The aim of this review is to provide a concise review of the recent literature that reports on the role of principal ionotropic receptors and metabotropic receptors in the modulation visceral pain. We also include an overview of the possibility of these receptors as potential new targets for the treatment of chronic visceral pain conditions.
Acute Pain
;
Chronic Pain
;
Efficiency
;
Frustration
;
Humans
;
Ion Channels
;
Ligand-Gated Ion Channels
;
Quality of Life
;
Receptors, Metabotropic Glutamate
;
Visceral Pain*
9.Frustration Still Exists.
Annals of Coloproctology 2014;30(5):207-207
No abstract available.
Frustration*
10.Efficiency status of the elective non-cardiac surgery operating rooms of the Department of Surgery of the Philippine General Hospital.
Lapitan Marie Carmela M. ; Buckley Brian S. ; Abalajon Donna D. ; Cruz Patricia Lorna O. ; Raymundo Maria Eliza M.
Acta Medica Philippina 2013;47(4):30-35
INTRODUCTION: The operating room (OR) is one of the most cost-intensive units of any health care facility. Hence, OR effeciency has become a priority of many institutions. Delays in the OR lead to poor cost effectiveness and cause frustration both to patients and to OR staff.
OBJECTIVES: This study aims to describe the efficiency of the Philippine General Hospital Department of Surgery elective non-cardiac surgery operating room services using established parameters and identify causes of delays.
METHODS: A cross-sectional survey was conducted of randomly selected elective cases from October 2011 to January 2012. A framework of elements in the OR process and timing milestones were defined. These times were recorded during the OR process. Mean and median observed times for these elements were calculated and compared with target times based on previous research. Causes of delay were recorded.
RESULTS: Once anesthesia was started, target times for most parameters were met in the majority of cases. Delays were most notable between patient entry to the OR complex and start of anesthesia, particularly for first cases. Only 3.9% of cases started at or before the scheduled time; 49.7% of cases started more than one hour late. 54.3% of late starts were caused by surgeons not being in the OR complex on time. Errors in estimating case duration were commonplace: more than one third of cases took more than an hour longer or shorter than estimated. While the mean delay in start for first cases was nearly one hour, the mean delay for second and third cases was nearly two hours.
CONCLUSION: The majority of cases start late. The most common cause of delay is the surgeon's tardiness. Considerable discrepancy between the predicted and actual case duration was also observed.
Human ; Operating Rooms ; Cost-benefit Analysis ; Frustration ; Anesthesiology ; Anesthesia ; Efficiency ; Surgeons ; Hospital Departments

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