Primary Study of Henan Cerebral Palsy Register and Rehabilitation Management System

Jun-ying YUAN; Yi-wen WANG; Jun WANG; Jie LIU; Bo CUI; Zhi-jun CAI; Hai CHEN; Yong-qiang GAO; Feng-wei LIU; Guo-hui NIU; Chun-ya SU; Jun-hui WANG; Liang WANG; Hua-chun XIONG; Hong-yin ZHAI; Deng-na ZHU

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Primary Study of Henan Cerebral Palsy Register and Rehabilitation Management System

VernacularTitle:河南省脑性瘫痪儿童登记管理及监测网络建设与数据分析
Author: Jun-ying YUAN ¹ ; Yi-wen WANG ¹ ; Jun WANG ¹ ; Jie LIU ¹ ; Bo CUI ¹ ; Zhi-jun CAI ¹ ; Hai CHEN ¹ ; Yong-qiang GAO ¹ ; Feng-wei LIU ¹ ; Guo-hui NIU ¹ ; Chun-ya SU ¹ ; Jun-hui WANG ¹ ; Liang WANG ¹ ; Hua-chun XIONG ¹ ; Hong-yin ZHAI ¹ ; Deng-na ZHU ¹
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1. Children Rehabilitation Department, the Third Affiliated Hospital, Zhengzhou University, Zhengzhou, Henan 450052, China
Publication Type:Research Article
Keywords: cerebral palsy; registration management; network construction
From: Chinese Journal of Rehabilitation Theory and Practice 2020;26(8):885-891
CountryChina
Language:Chinese
Abstract: Objective:To introduce the construction of Henan Cerebral Palsy Register and Rehabilitation Management System (HCPRRMS) and to explore the construction project of regional register and surveillance of cerebral palsy. Methods:The construction process, registration content and preliminary results of HCPRRMS were systematically introduced. Results:HCPRRMS was independent developed in 2014. Since March, 2015, the system has been used to register information of patients with cerebral palsy in the Third Affiliated Hospital of Zhengzhou University. Until September, 2019, a total of 23 child rehabilitation institutions had used the registration management system. There were 1357 patients with cerebral palsy registered in this system, in which 936 cases (68.98%) were male, 501 cases (36.92%) were with gestational weeks < 37, 443 cases (32.65%) were with birth weight < 2500 g, and 430 cases (31.69%) were born with hypoxic-ischemic encephalopathy. Among them, the spastic cerebral palsy patients (1117 cases, 86.74%) accounted for the highest proportion. There was significant difference among types of cerebral palsy and the classification of GMFCS. A total of 1117 patients with cerebral palsy showed MRI-identified brain abnormalities, in which, periventricular leukomalacia accounted for the most (480 cases). For the complications, epilepsy accounted for 14.44% (196 cases), vision impairment accounted for 8.03% (109 cases), hearing impairment accounted for 11.64% (158 cases). Among 769 cases aged more than two years, language-speech dysfunction accounted for 52.66% (424 cases); and among 216 cases aged more than four years, mental retardation accounted for 37.96% (82 cases). Conclusion:HCPRRMS could help to understand the risk factors, clinical characteristics, and complications of cerebral palsy.