A Systematic Review of Health-Related Quality of Life Assessment Instruments for Cancer Patients: A Malaysian Perspective
- Author:
Jing Sheng Lim
1
;
Renukha Sellappans
1
;
Kenneth Kwing Chin Lee
1
;
Kenneth Kwing-Chin Lee
2
Author Information
- Publication Type:Review
- Keywords: Health-Related Quality of Life; Neoplasms; Malaysia; Assessment; Review.
- From: International Journal of Public Health Research 2025;15(1):2201-2214
- CountryMalaysia
- Language:English
- Abstract: A Systematic Review of Health-Related Quality of Life Assessment Instruments for Cancer Patients: A Malaysian Perspective:Introduction The absence of a review of health-related quality of life (HRQoL) assessment tools has led to inconsistencies in the use of HRQoL instruments across different cancer populations, such as adults, pediatric patients, and caregivers, limiting the comparability of findings and hindering the accurate evaluation of cancer care outcomes. With that, this study aimed to investigate how Malaysian cancer patients’ and other sub-population’s HRQoL is measured and quantified through HRQoL assessment instrument. Methods From 2013 to 2023, a literature search was conducted on Scopus, PubMed, Cochrane Library, and ClinicalTrials.gov. The included studies and previously published review papers were also cited backward. For each HRQoL assessment instrument, attributes such as author(s), year of publication, study site, study design, target population, cancer types, study purpose, sample size, and instrument languages were extracted and compared. Results In this systematic review encompassing 88 studies, a variety of HRQoL assessment tools were employed, including both generic and cancer-type specific instruments. Distinct HRQoL assessment tools were identified for different populations, including pediatric, adolescent, and caregiver groups. The findings underscore the wide variety of instruments used across different cancer populations and age groups, highlighting the need for tailored assessments that consider specific demographic and clinical contexts. While generic HRQoL tools were the most commonly used across studies, disease-specific instruments for various cancer types were also frequently employed as supplementary measures. Conclusion Moving forward, it is essential for stakeholders to collaborate in addressing the gaps in HRQoL research and to work towards the standardization of HRQoL assessment tools to ensure consistency and comparability in future studies.
- Full text:2026061110531309155A Systematic Review of Health-Related Quality of Life.pdf
