Malaysia’s Evolving Rare Disease Ecosystem: Challenges, Interventions & System Imperatives

Author: Meow-Keong Thong ¹ ; Meow-Keong Thong ² ; Teguh Haryo Sasongko ³ ; Teguh Haryo Sasongko ⁴ ; Nadiah Hanim Abdul Latif ⁵
Author Information

1. Genetics and Metabolism Unit, Department of Paediatrics, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia
2. M Kandiah Faculty of Medicine and Health Sciences, Universiti Tunku Abdul Rahman, Kajang, Selangor, Malaysia
3. Institute for Research, Development, and Innovation (IRDI), IMU University, Kuala Lumpur, Malaysia
4. Department of Human Biology, School of Medicine, IMU University, Kuala Lumpur, Malaysia
5. Malaysian Rare Disorders Society, Bangunan Sultan Salahuddin Abdul Aziz Shah, Petaling Jaya, Selangor, Malaysia
Publication Type:Observational Study
MeSH: Rare Diseases-Malaysia.
From: International e-Journal of Science, Medicine and Education 2025;19(3):2-12
CountryMalaysia
Language:English
Full text:2026061018460963021Malaysia’s Evolving Rare Disease Ecosystem.pdf