Dilemmas in the practice of pulmonary rehabilitation exercises for caregivers of children with post-infectious bronchiolitis obliterans: a qualitative study
10.3760/cma.j.cn115682-20240925-05324
- VernacularTitle:感染后闭塞性细支气管炎患儿照顾者肺康复运动实践困境的质性研究
- Author:
Minmin CHANG
1
;
Xiuli CHEN
;
Huijing CHEN
;
Wenqi LI
;
Weijuan LIU
Author Information
1. 广州医科大学护理学院，广州 510000
- Publication Type:Journal Article
- Keywords:
Bronchiolitis obliterans;
Pediatric patients;
Caregivers;
Pulmonary rehabilitation exercise;
Qualitative research
- From:
Chinese Journal of Modern Nursing
2025;31(21):2801-2807
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the dilemmas of caregivers in managing pulmonary rehabilitation exercises in children with post-infectious bronchiolitis obliterans, so as to provide guidance for the development of a pulmonary rehabilitation exercise program.Methods:This study utilized the descriptive qualitative research method. From August to December 2023, 22 primary caregivers of children with post-infectious bronchiolitis obliterans in the First Affiliated Hospital of Guangzhou Medical University were selected by purposive sampling method as study subjects for semi-structured interviews. The information was analyzed using the Colaizzi 7-step analysis.Results:A total of three themes and nine sub-themes were distilled, including information (concern for information on pulmonary rehabilitation exercise showing dynamic changes with the course of the disease, access to information on disease diagnosis and treatment and pulmonary rehabilitation exercise management through non-professional channels, biased perceptions of pulmonary rehabilitation exercise, and lack of a unified guide to information on pulmonary rehabilitation exercise) ; motivation (physiological and psychological barriers in the management and implementation of pulmonary rehabilitation exercises, lack of comprehensiveness and continuity of professional instruction in pulmonary rehabilitation exercises, and insufficient communication and collaborative support among family members) ; and behavioral skills (insufficient mastery of respiratory training methods with complex procedures, and lack of the ability to effectively plan a pulmonary rehabilitation exercise program) .Conclusions:Caregivers of children with post-infectious bronchiolitis obliterans face certain dilemmas in managing pulmonary rehabilitation exercises. It is necessary to improve caregivers' awareness of the benefits of pulmonary rehabilitation exercise, strengthen their perception of exercise benefits, and enhance their training in pulmonary rehabilitation exercise skills, pay attention to children's exercise preferences, and perfect the social support system for diseases to promote the implementation of pulmonary rehabilitation exercise in children.
