Qualitative study on the symptom management experience of tuberculosis patients undergoing home-based chemotherapy
10.3760/cma.j.cn115682-20250127-00443
- VernacularTitle:结核病患者居家化疗相关症状管理体验的质性研究
- Author:
Jia WANG
1
;
Xiuhua WANG
;
Xiaoke JIAO
;
Xiaofeng CHEN
;
Weiguang MA
Author Information
1. 中国医学科学院北京协和医学院护理学院,北京 100144
- Publication Type:Journal Article
- Keywords:
Tuberculosis;
Symptom management;
Experience;
Adverse drug reactions;
Qualitative research
- From:
Chinese Journal of Modern Nursing
2025;31(12):1574-1581
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the symptom management experience and needs of tuberculosis patients undergoing home-based anti-tuberculosis chemotherapy.Methods:This was a descriptive qualitative study. Purposeful sampling was used to select tuberculosis patients receiving home-based chemotherapy and healthcare professionals with tuberculosis experience from Beijing Chest Hospital, Capital Medical University between March and July 2024. Semi-structured interviews focused on the management experience and needs related to chemotherapy symptoms. Data were analyzed using thematic analysis.Results:A total of 13 tuberculosis patients and six healthcare professionals were interviewed. A total of four core themes were identified: multiple concurrent symptoms exacerbate the difficulty of home disease management and cause multidimensional distress; tuberculosis patients have insufficient self-management skills for symptoms; there is a high and diverse demand for symptom management during home chemotherapy; and the out-of-hospital follow-up and monitoring system struggles to address symptom management effectively.Conclusions:Tuberculosis patients undergoing home chemotherapy face significant and challenging symptom management burdens. Future improvements should include enhancing continuity of care outside the hospital, developing specific symptom assessment tools, and establishing an efficient, multi-symptom integrated management strategy combining home and hospital care to improve symptom management experience and outcomes for tuberculosis patients.