Patient Journey-Based Insights into the Preferences and Needs of Patients with Diffuse Large B-Cell Lym-phoma
- VernacularTitle:基于患者旅程的弥漫大B细胞淋巴瘤患者治疗偏好和需求研究
- Author:
Ruixue FAN
1
;
Huiqin YUAN
1
;
Jieying ZHANG
1
;
Ningying MAO
1
Author Information
1. 中国药科大学国际医药商学院 江苏 南京 211198
- Publication Type:Journal Article
- Keywords:
diffuse large B cell lymphoma;
patient;
preferences;
needs
- From:
Chinese Hospital Management
2025;45(2):29-34
- CountryChina
- Language:Chinese
-
Abstract:
Objective To investigate the diagnosis,treatment and follow-up experience of patients with diffuse large B cell lymphoma,explore their preferences and needs,and improve their treatment experience and effectiveness.Methods From August to November 2023,17 patients and their family members were interviewed in one-hour semi-structured interviews,which were organized and analyzed by Excel.Results The preference,diagnosis stage and diagnosis time were mainly related to the complexity of symptoms and knowledge storage.Patients selected hospitals according to their medical habits and geographical location,and the departments were recommended by the guidance desk or judged by experience.In the treatment stage,the choice of hospital mainly considers the comprehensive strength,recommendation of relatives and geographical location,trust doctors and choose treatment plan according to their own conditions;In the follow-up stage,all patients were followed up according to the doctor's advice.About the need,diagnosis stage,hope to improve the level and speed of pathological diagnosis.During the treatment phase,patients and family members expressed their needs for drug policy assurance,accessibility and convenience of chemotherapy,and easy-to-communicate physician and patient education guidelines;In the follow-up stage,it hopes to have easy-to-use follow-up management tools.Conclusion It is suggested that the government should pay more attention to drug guarantee,issue patient education guidelines and pay more attention to popular science education of major diseases.It is recommended that hospitals improve the level and speed of pathological diagnosis,increase the opening rate of daytime chemotherapy area,use smart bed reservation system and actively popularize the latest research results of diseases.
