The experience of exclusion diet in children with Crohn's disease and their parents:a qualitative study
10.3761/j.issn.0254-1769.2025.17.013
- VernacularTitle:克罗恩病患儿及其父母行排除性饮食体验的质性研究
- Author:
Lijuan WEI
1
;
Jialin HUANG
1
;
Huan YANG
1
;
Miaoxian ZHANG
1
;
Chaomi ZHANG
1
;
Lanlan GENG
1
;
Liya XIONG
1
;
Liying LIU
1
Author Information
1. 510623 广州市 广州医科大学附属妇女儿童医疗中心消化内科
- Publication Type:Journal Article
- Keywords:
Crohn's Disease Exclusion Diet;
Experience;
Qualitative Research;
Pediatric Nursing
- From:
Chinese Journal of Nursing
2025;60(17):2131-2136
- CountryChina
- Language:Chinese
-
Abstract:
Objective To explore the experiences of children with Crohn's disease and their parents regarding the exclusion diet,and to provide a basis for formulating personalized dietary guidance programs.Methods A total of 12 children with Crohn's disease and their parents,hospitalized in the Department of Gastroenterology at a tertiary children's hospital in Guangzhou from June to December 2023,were selected as research subjects using objective sampling.Semi-structured interviews were conducted,and the data were analyzed and refined using Colaizzi's seven-step analysis method.Results Totally 3 themes and 14 sub-themes were extracted.①Lack of cognition and trust in Crohn's disease exclusion diet(unfamiliarity with the contents of the diet,misunderstanding of the diet's preparation,inadequate response to daily exclusion diet practices,parents' distrust in the exclusion diet).②The practical challenges of the Crohn's disease exclusion diet(the challenge of personal dietary preferences,the challenge of family meal preparation,the challenge of school feeding,food intolerance,feelings of monotony and weariness following the exclusion diet).③Innovations in practicing the Crohn's disease exclusion diet(managing taste fatigue,managing visual fatigue,innovative cooking methods,prioritizing exclusive enteral nutrition followed by the exclusion diet,overcoming the desire for universal food).Conclusion Children with Crohn's disease and their parents exhibit insufficient cognition and trust in the exclusion diet and face various challenges in practice.Clinical medical staff should adopt personalized coping strategies tailored to the specific circumstances of each child.
