Development process of family resilience in children with congenital pseudarthrosis of the tibia based on grounded theory
10.3760/cma.j.cn115682-20240604-03143
- VernacularTitle:基于扎根理论的先天性胫骨假关节患儿家庭抗逆力发展过程研究
- Author:
Lan YIN
1
;
Jianhui XIE
;
Jialing LONG
;
Le XU
;
Lanying WANG
;
Yaqi OUYANG
;
Yinzhi YI
;
Can GU
Author Information
1. 南华大学护理学院，衡阳 421001
- Publication Type:Journal Article
- Keywords:
Congenital pseudarthrosis of the tibia;
Family resilience;
Grounded theory;
Caregivers
- From:
Chinese Journal of Modern Nursing
2025;31(12):1599-1604
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the development process of family resilience in children with congenital pseudarthrosis of the tibia (CPT) and to understand the long-term challenges and coping strategies that CPT imposes on the families of affected children.Methods:This study combined purposive sampling and theoretical sampling. It selected 15 caregivers of CPT children from Hunan Children's Hospital for semi-structured interviews. Grounded theory was used to analyze the interview results.Results:The development of family resilience in CPT children's families occurred in three stages: pre-formation stage, formation stage, and maintenance stage. In facing negative emotions and family challenges, caregivers first needed to rebuild their inner beliefs. They then adjusted the family organizational model, adopted open and inclusive communication, and actively sought external support to foster the development of family resilience. Ultimately, caregivers were able to self-regulate their emotions, accumulate caregiving experience, and begin to shift their life perspective.Conclusions:The development of family resilience in CPT children's families is a dynamic, multi-stage process with interactions of multiple factors. Healthcare providers should offer professional health guidance according to the different stages of family development. Moreover, the government and schools should increase their attention and support, working together with families and healthcare providers to enhance family resilience for children with CPT.
