Continuing care needs of primary caregivers for neonates with enterostomy: a qualitative study
10.3760/cma.j.cn115682-20240207-00768
- VernacularTitle:肠造口新生儿主要照顾者延续照护需求的质性研究
- Author:
Yunsha KUANG
1
;
Sufang LI
;
Tingting YAN
;
Lu CHEN
;
Xueqing LI
Author Information
1. 深圳市儿童医院普外新生儿外科，深圳 518038
- Publication Type:Journal Article
- Keywords:
Stoma care;
Enterostomy;
Neonate;
Caregiving need;
Qualitative research
- From:
Chinese Journal of Modern Nursing
2025;31(2):244-248
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the continuing care needs of primary caregivers for neonates with enterostomy during the discharge transition period, based on Meleis's Transitions Theory.Methods:Totally 17 primary caregivers of neonates with enterostomy who were hospitalized or attending follow-up visits at Shenzhen Children's Hospital from June to December 2022 were selected by purposive sampling. Semi-structured in-depth interviews were conducted, and the data were analyzed using Colaizzi's seven-step phenomenological analysis method.Results:Four themes emerged: the need for caregiving knowledge, guidance on stoma care and operation skills, the demand for diverse forms of continuing care services, and psychological support needs.Conclusions:Primary caregivers for neonates with enterostomy face numerous challenges and needs during the discharge transition period. Essential strategies include providing stoma care training and assessment before discharge, enhancing caregiving capacity, implementing diversified health education to improve caregivers' knowledge accessibility, delivering hybrid (online and offline) multidisciplinary continuing care services, and addressing caregivers' psychological well-being.
