A journey map study of the health management needs of caregivers with adolescent idiopathic scoliosis
10.3760/cma.j.cn211501-20250526-01587
- VernacularTitle:青少年特发性脊柱侧凸患者照顾者健康管理需求旅程地图研究
- Author:
Rong YAN
1
;
Huiwen WANG
;
Yan HE
;
Xuedan LI
;
Jie LUO
;
Suyun LI
Author Information
1. 华中科技大学同济医学院附属协和医院骨科，武汉 430022
- Publication Type:Journal Article
- Keywords:
Scoliosis;
Adolescent;
Caregivers;
Health management needs;
Journey map
- From:
Chinese Journal of Practical Nursing
2025;41(32):2481-2491
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To identify the health management needs of caregivers' for adolescent patients with scoliosis based on the journey map, and provide a reference for improving the medical experience and optimizing the whole-journey care level.Methods:On the basis of literature review, combined with semi-structured interview method and group discussion method, we conducted semi-structured interview with the main caregivers of 13 adolescent scoliosis patients in Union Hospital, Tongji Medical College, Huazhong University of Science and Technology in June to October 2024, analyzed the data and drew a journey map.Results:A total of 13 respondents who met the inclusion and exclusion criteria were recruited, including 5 men and 8 women, with an age range of 32 to 45 years. Caregivers' health management needs were summarized from three dimensions: tasks, emotions, and pain points, following a timeline.Through the visualization of the journey map, the caregiver's cognitive gaps during the covert phase, information anxiety and decision-making dilemmas, need for early diagnosis and treatment, and challenges in symptom management ect. in the entire journey of health management were presented, and fifteen themes were summarized.Conclusions:The needs of caregivers for the journey of health management of postoperative adolescent idiopathic scoliosis patients are diversified, and should be demand-oriented to provide precise care support, improve medical experience, and provide ideas and methods for research on postoperative patient health management service optimization.
