A qualitative study on the role adaptation process of parents of children with autism spectrum disorders as caregivers
10.3760/cma.j.cn211501-20240731-02061
- VernacularTitle:自闭症谱系障碍患儿父母照顾者角色适应历程的质性研究
- Author:
Binlu LI
1
;
Yanbo WANG
;
Xiquan MA
;
Jun LE
Author Information
1. 同济大学医学院，上海 200331
- Publication Type:Journal Article
- Keywords:
Autism spectrum disorder;
Children;
Parent caregivers;
Role adaptation;
Qualitative study
- From:
Chinese Journal of Practical Nursing
2025;41(21):1615-1621
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the adaptation process of the caregiving role of parents of children with autism spectrum disorder(ASD), and provide reference for targeted intervention strategies.Methods:Using purposive sampling, parents of children with ASD from the Pediatric Rehabilitation Center of Yangzhi Rehabilitation Hospital affiliated with Tongji University (Shanghai Sunshine Rehabilitation Center) were selected as study participants from October 2023 to May 2024.A qualitative research approach employing interpretative phenomenological analysis was adopted, with interviews conducted among 8 parents of children with ASD. Interview data were recorded, transcribed, and analyzed according to interpretative phenomenological analysis.Results:A total of 8 parents of children with ASD were interviewed, including 1 father and 7 mothers, aged 35-45 years. The process of stigma acceptance among parents of children with ASD as caregivers could be summarized into four themes: the acceptance journey of disease diagnosis; family responses to the impact of the disease; integration strategies across different living spaces; and mutual growth with the child through companionship and care.Conclusions:The diagnosis of ASD triggers intense emotional reactions in parents and leads to changes in family relationships and role functions. Collaborative efforts among healthcare institutions, schools, and community systems are necessary to empower parents of children with ASD, facilitating their adaptation to caregiving roles, enhancing their caregiving capabilities, and ultimately supporting better social integration for children with ASD.
