Domestic and international experience and implications on development and utilization of health data
10.3969/j.issn.1674-2982.2025.10.009
- VernacularTitle:卫生健康数据开发利用的国内外经验与启示
- Author:
Ru WANG
1
;
Jun FENG
;
Lu-yi JIANG
Author Information
1. 上海市卫生和健康发展研究中心(上海市医学科学技术情报研究所) 上海 200031
- Publication Type:Journal Article
- Keywords:
Health data;
Development and utilization;
Authorized operation
- From:
Chinese Journal of Health Policy
2025;18(10):66-74
- CountryChina
- Language:Chinese
-
Abstract:
Data has become the fifth major factor of production in China.To accelerate the development and utilization of public data resources,China has established a"1+3"policy system framework.However,there remains considerable room for exploration in aspects such as data authorization pricing and authorization models.In particular,health data possesses both personal privacy and public data attributes,requiring multi-factor trade-offs between security protection and development benefits.The United Kingdom,the United States,and China's Hong Kong Special Administrative Region have accumulated certain prior experiences in the development and utilization of health data.This article systematically studied and sorted out the institutional design of the construction,organizational structure,and operation mechanism of health data open platforms in these three countries/regions.Combining with China's domestic realities,specific suggestions were put forward regarding the construction of health data platforms,data resource registration,ethical review and security management,as well as pricing mode,aiming to provide a reference basis for the formulation of relevant policies and systems.
