Needs of full participation in intestinal management for primary caregivers of patients with neurogenic bowel dys-function after spinal cord injury:a qualitative study
10.3969/j.issn.1006-9771.2025.08.013
- VernacularTitle:脊髓损伤神经源性肠道功能障碍患者主要照顾者全程参与肠道管理需求的质性研究
- Author:
Liangxiang REN
1
;
Peipei MEI
1
;
Erli MAO
1
;
Yifan TANG
1
;
Xue WANG
1
;
Yiqing YE
1
Author Information
1. 江苏省人民医院(南京医科大学第一附属医院)老年康复病区,江苏 南京市 210029
- Publication Type:Journal Article
- Keywords:
spinal cord injury;
neurogenic bowel dysfunction;
primary caregiver;
whole intestinal management;
nurse;
qualitative study
- From:
Chinese Journal of Rehabilitation Theory and Practice
2025;31(8):965-971
- CountryChina
- Language:Chinese
-
Abstract:
Objective To investigate the needs of the main caregivers of patients with spinal cord injury following neurogenic bowel dysfunction to participate in the whole process of intestinal management.Methods Nine main caregivers of patients with spinal cord injury in Jiangsu Province Hospital from January to Decem-ber,2024 were selected with objective sampling method.They were investigated face-to-face semi-structured in-depth interviews,and the data were analyzed,summarized and extracted by Colaizzi 7-step analysis method.Results Three themes and eight sub-themes were extracted:the needs of professional knowledge and skills standards in intestinal management(lack of intestinal training knowledge,lack of ability to acquire knowledge and different standards of medical institutions);the needs of physical ability and decision making ability participating in intesti-nal training(lack of participation,single decision-making behavior,excessive dependence on medical personnel);the desire for therapeutic benefits and the needs for building psychological confidence(concerns about the pa-tient's prognosis,overdependence on medication).Conclusion Clinical medical staff should pay attention to the actual needs and difficulties faced by the main caregivers of patients with neurogenic bowel dysfunction to participate in the entire intestinal management,and construct targeted training programs,strengthen the skills and knowledge training,to enhance their autonomy and responsi-bility,to achieve the rehabilitation goal better.
