Influencing factors of family caregivers' caregiving capacity for children with Hirschsprung's disease:a mixed-method study
10.3761/j.issn.0254-1769.2025.18.010
- VernacularTitle:先天性巨结肠患儿家庭照护者照顾能力影响因素的混合研究
- Author:
Anqi WU
1
;
Yuanyuan ZHANG
;
Qian LI
;
Zhilong YAN
;
Jie WU
;
Yaqing ZHANG
Author Information
1. 200127 上海市 上海交通大学医学院附属上海儿童医学中心普外科
- Publication Type:Journal Article
- Keywords:
Hirschsprung's Disease;
Family Caregivers;
Caregiving Capacity;
Mixed-Method Study;
Home Care;
Pediatric Nursing
- From:
Chinese Journal of Nursing
2025;60(18):2238-2245
- CountryChina
- Language:Chinese
-
Abstract:
Objective To evaluate the caregiving capacity of family caregivers of children with hirschsprung's disease(HD)and to establish an evidence base for developing family-empowered home care interventions.Methods An explanatory sequential mixed-method design was employed.A total of 308 family caregivers of HD patients admitted to the Pediatric Surgery Department of a tertiary children's hospital in Shanghai,were enrolled from July 2019 to July 2024.Quantitative data were collected in 2024 using a demographic questionnaire,the Zarit Caregiver Burden Interview and the Family Caregiver Task Inventory.Semi-structured interviews were conducted in August to December 2024 with 15 caregivers of children with HD with poor caregiving skills.Quantitative data were analyzed using nonparametric tests and multiple linear regression,and qualitative information was refined through Colaizzi's 7-step analysis of themes.Results In the end,281 valid questionnaires were recovered.The total caregiving competence was 12.00(6.00,20.00).Multivariate analysis identified significant predictors of caregiving competence,including children in the postoperative dilation period,frequency of enterocolitis episodes,place of residence monthly household income and burden of caregiving were the factors influencing the ability of family caregivers to take care of their children(P＜0.05).Qualitative analysis revealed 4 themes:persistent multidimensional adaptive challenges,disparity in clinical caregiving skills,systemic support limitations,and role multiplicity strain.Conclusion Family caregivers of children with HD face multidimensional stressors,necessitating a dynamic,family-centered support ecosystem.Strategic interventions should focus on enhancing clinical caregiving literacy while improving access to socioeconomic resources and establishing role-specific support networks.
