A journey map study of disease management in young and middle-aged liver transplant recipients
10.3761/j.issn.0254-1769.2025.15.009
- VernacularTitle:中青年肝移植患者疾病管理的旅程地图研究
- Author:
Yue QIAO
1
;
Qingwei LIU
;
Hui LIN
;
Kai ZHU
;
Hui LI
;
Yanan DU
;
Hongyan ZHANG
Author Information
1. 266035 青岛市 青岛大学附属医院肝脏病中心监护室
- Publication Type:Journal Article
- Keywords:
Patient Journey Mapping;
Liver Transplantation;
Young and Middle-Aged;
Disease Management;
Quality of Life;
Nursing Care
- From:
Chinese Journal of Nursing
2025;60(15):1850-1857
- CountryChina
- Language:Chinese
-
Abstract:
Objective Utilizing patient journey mapping to decipher disease management behaviors,barriers,and needs in young and middle-aged liver transplant recipients,providing implications for self-management optimization and quality of life improvement.Methods Using purposive sampling,12 young and middle-aged liver transplant patients who attended outpatient clinics or were hospitalized in liver transplant center of a tertiary hospital in Qingdao were selected for semi-structured interviews from September to November 2024.Thematic extraction and analysis were performed using Colaizzi's 7-step analysis,ultimately resulting in the development of a patient journey map.Results The journey stages were divided into transplantation decision-making period,transplantation waiting period,perioperative period,and post-discharge management period,and the journey key elements were designed as behaviors,barriers,and needs.A total of 25 themes were extracted,including behaviors(such as referrals to higher-level hospitals,verification of treatment options),barriers(such as lack of decision-making autonomy,health information-seeking barriers),and needs(such as shared decision-making,financial assistance).Ultimately,resulting in a map of the disease management journey for young and middle-aged liver transplant recipients.Conclusion The behaviors,barriers,and needs in disease management among young and middle-aged liver transplant recipients demonstrate distinct phase-specific patterns.Healthcare providers should deliver precise and dynamic interventions tailored to each clinical phase,aiming to foster optimal self-management behaviors,address phase-specific banriers,and meet evolving patient needs throughout the transplant continuum.
