Construction and application of a decision support education program on hospice care for family members of patients with advanced cancer
10.3761/j.issn.0254-1769.2025.11.010
- VernacularTitle:晚期癌症患者家属安宁疗护决策支持教育方案的构建和应用研究
- Author:
Changlian CHEN
1
;
Shumei ZHUANG
;
Jiayan CAO
;
Xiwei CHEN
;
Xuya HAN
;
Xinyu TANG
;
Jinjing XIE
;
Wanmin QIANG
Author Information
1. 300060 天津市 天津医科大学肿瘤医院/国家恶性肿瘤临床医学研究中心/天津市恶性肿瘤临床医学研究中心/天津市头颈肿瘤基础与转化医学重点实验室颌面耳鼻喉肿瘤科
- Publication Type:Journal Article
- Keywords:
Cancer;
Family Members;
Hospice Care;
Decision Support;
Health Education;
Nursing Care
- From:
Chinese Journal of Nursing
2025;60(11):1344-1351
- CountryChina
- Language:Chinese
-
Abstract:
Objective To construct a decision support education program for the family members of patients with advanced cancer and to investigate its application effects,so as to improve understanding and acceptance of hospice care for family members of advanced cancer patients.Methods Using the Ottawa Decision Support Framework as a theoretical guide,the program was initially drafted based on a literature review,qualitative interview and expert consultation.From September 2023 to January 2024,a convenience sampling method was used to select patients' families in a tertiary-level hospital in Tianjin as the research subjects,and they were randomly divided into an experimental group and a control group.The experimental group received the decision support education program in addition to routine care,while the control group received routine care.Family members' knowledge about hospice,the scores on the Death Attitude Profile Scale,and their willingness to choose hospice care were compared before and after the interventions.Results The program finally included 4 first-level items,15 second-level items,and 59 third-level items.During the program implementation phase,4 cases withdrew from the study,resulting in 46 cases in the experimental group and 47 cases in the control group.After intervention,the experimental group had higher scores on hospice knowledge and positive attitude towards death than the control group,while scores on negative attitude towards death were lower(P＜0.05);their willingness to choose hospice care for themselves and for the patients was higher than that of the control group(P＜0.05).Conclusion The hospice care decision support education program is scientific,feasible and practical,which can improve the knowledge of hospice care of the family members,improve their attitude towards death,and ultimately improve their willingness to choose hospice care.
