Effect of supervised follow-up nursing based on family empowerment on nutritional status in children with Duchenne muscular dystrophy
10.3969/j.issn.1009-0754.2024.11.015
- VernacularTitle:基于家庭赋权的督导跟进式护理在杜氏肌营养不良症患儿中的应用效果
- Author:
Qiaowei SHI
1
;
Hongge SUN
;
Hua CHEN
Author Information
1. 710061 陕西 西安,西北妇女儿童医院儿内科
- Keywords:
Duchenne muscular dystrophy;
Family empowerment;
Nutritional status;
Care ability
- From:
Journal of Navy Medicine
2024;45(11):1172-1177
- CountryChina
- Language:Chinese
-
Abstract:
Objective To analyze the effect of supervised follow-up nursing based on family empowerment on nutritional status in children with Duchenne muscular dystrophy(DMD).Methods A total of 85 children with DMD who were treated in Northwest Women and Children's Hospital between January 2020 and January 2023 were enrolled in this study.According to different nursing methods,they were divided into control group(n=40,routine nursing)and observation group(n=45,supervised follow-up nursing based on family empowerment+routine nursing).The nutritional status(body moisture,protein,fat content,basal metabolic rate[BMR]),family care ability(assessed by family caregiver task inventory-25),motor function(assessed by Fugl-Meyer Assessment Scale[FMA]),quality of life(investigated by inventory of subjective life quality[ISLQ])and nursing satisfaction of family members were compared between the two groups.Results After intervention,the body moisture,protein and BMR in the observation group were higher than those in control group,while fat content in the observation group was lower than that in control group(P<0.05).The scores of family care ability in the observation group were lower than those in the control group(P<0.05).FMA score,ISLQ scores(cognition and emotions),and the degree of nursing satisfaction of family members in the observation group were higher than those in the control group(P<0.05).Conclusion Supervised follow-up nursing based on family empowerment can improve motor function,nutritional status,quality of life and family satisfaction in DMD children by enhancing care ability of family members.
