Current status and influential factors of self-management ability in patients with systemic lupus erythematosus
10.19723/j.issn.1671-167X.2024.06.013
- VernacularTitle:系统性红斑狼疮患者自我管理能力现状及相关因素分析
- Author:
Li WANG
1
;
Chao GAO
1
;
Huanhuan REN
1
;
Yanping SHEN
1
;
Xiaowei HUANG
1
;
Hong YAO
1
;
Dandan HAN
1
Author Information
1. 北京大学人民医院风湿免疫科,北京 100044
- Publication Type:Journal Article
- Keywords:
Systemic lupus erythematosus;
Self-management;
Self-efficacy;
Family concern index
- From:
Journal of Peking University(Health Sciences)
2024;56(6):1029-1035
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To investigate the current status of self-management ability in patients with sys-temic lupus erythematosus(SLE),and to analyze the related factors affecting the self-management ability of SLE patients.Methods:A total of 180 SLE patients who were selected from the outpatient department and ward of the Department of Rheumatology and Immunology of a Tertiary Hospital in Beijing from January 2024 to March 2024.General information questionnaire,SLE self-management ability assessment scale,general self-efficacy scale(GSES)and family concern index questionnaire(APGAR)were used for questionnaire investigation,so as to investigate the current status and related influencing factors of self-management ability in patients with SLE.Results:A total of 170 questionnaires were effectively collected,and the total score of self-management ability was(90.94±14.26)points,of which 103 pa-tients were 89-110 points,accounting for 60.6％;60 patients were 67-88 points,accounting for 35.3％;7 patients were 0-66 points,accounting for 4.1％;The results of univariate analysis showed that personal monthly income,follow-up frequency,family caring index,self-efficacy and SLE self-management ability score had statistical significance(P＜0.05).Spearman rank correlation analysis showed that family caring index,self-efficacy scores were positively correlated with the scores of various dimensions and the total score of SLE self-management scores(P＜0.001).Multivariate Logistic regres-sion analysis showed that family caring index(OR=1.503,95％CI=1.186-1.906),self-efficacy(OR=1.103,95％CI=1.03 8-1.172),personal monthly income of 5 000-8 000 yuan/month(OR=0.120,95％CI=0.022-0.645)and 1-2 weeks return frequency(OR=0.044,95％CI=0.003-0.575)were significant influencing factors for SLE patients'self-management ability.Conclusion:The re-sults of this study indicate that patients with SLE have a good level of self-management ability.In the process of chronic disease management,medical staff should formulate detailed and layered intervention measures to further improve self-management ability with SLE patients,and at the same time,help SLE patients establish good family caring index and patient self-efficacy,which is conducive to improving self-management ability of SLE patients,so as to effectively promote disease management and improve the quality of life.
