Research progress on patient-reported outcome measures in amyotrophic lateral sclerosis
10.3760/cma.j.cn115682-20220128-00499
- VernacularTitle:肌萎缩侧索硬化患者报告结局测量工具的研究进展
- Author:
Na MA
1
;
Donghua WANG
Author Information
1. 长沙医学院护理学院，长沙 410219
- Keywords:
Review;
Amyotrophic lateral sclerosis;
Patient-reported outcomes;
Measuring tools
- From:
Chinese Journal of Modern Nursing
2022;28(29):4121-4126
- CountryChina
- Language:Chinese
-
Abstract:
Amyotrophic lateral sclerosis is a rare neurodegenerative disease for which there is currently no cure. Improving the quality of life of patients with amyotrophic lateral sclerosis is an important issue faced by clinical medical and nursing staff. The assessment of patient-reported outcomes has gradually become an important part of the collection of patient health information in clinical practice. This article reviews the current status and clinical applications of patient-reported outcome measures in patients with amyotrophic lateral sclerosis, in order to provide a reference for promoting research on patient-reported outcomes in patients with amyotrophic lateral sclerosis in China.
