Establishment and application of family-centred health education programe for family caregivers of Autistic children
10.3969/j.issn.1671-8283.2024.01.006
- VernacularTitle:以家庭为中心的孤独症患儿照顾者健康教育方案的构建及应用
- Author:
Xiaohong WAN
1
;
Xiaoqing KANG
;
Shunli CHEN
;
Qulian GUO
Author Information
1. 西南医科大学附属医院儿科(儿童血液肿瘤与出生缺陷实验室,四川省出生缺陷临床医学研究中心) ,四川泸州,646000
- Keywords:
Autism;
family caregivers;
health education;
family-centred;
Delphi method
- From:
Modern Clinical Nursing
2024;23(1):35-42
- CountryChina
- Language:Chinese
-
Abstract:
Objective To propose a family-centred health education program for family caregivers of Autistic children and investigate its clinical value.Methods Delphi method was used to establish a family-centred Autistic children care program for family caregivers looking after the Autistic children,which involved two rounds of expert consultation.The pre-and post-control method for different cases was employed in the study.Forty Autistic caregivers in our hospital from January 2022 to October 2022 were assigned to the control group and another 40 in our hospital from November 2022 to January 2023 were assigned to the observation group.The family caregivers of Autistic children in the control group received traditional care education,while those in the observation group was managed with the family-centred Autistic children health education program.The two groups were compared in terms of care burden,knowledge of health education,and evaluation of clinical symptom of Autistic children.Results The expert authority coefficient of the first round of expert consultation was 0.875 respectively and those in the second round was 0.900,respectively.The coefficient of variation of the coordination degree of each index was 0.04-0.20.Kendalls W scores of the two rounds were 0.794 and 0.786,respectively.A health education program for family-centred Autistic children caregiver was established to consist of three subjects:caregiver training,family-centred parental care and activation of positive emotions of autistic caregivers.Autism caregivers in both groups had completed the study.In comparison with the control group,the care burden of the observation group was significantly lower,the knowledge of health education was significantly higher,and the evaluation of children's clinical symptoms was better among the family caregivers of autistic children in the observation group(all P<0.05).Conclusions The family-centred autistic children care program for family caregivers is scientific and applicable.It is conducive to providing health education guidance for family caregivers of Autistic children,effectively reducing the care burden and enhancing the knowledge of health education.
