Qualitative Study on the Emotional Experience of Family Caregivers of Inpatients with Pemphigus
10.12026/j.issn.1001-8565.2023.05.14
- VernacularTitle:天疱疮住院患者家属照顾者情感体验的质性研究
- Author:
Xiaomin GAO
1
;
Jinhua JIA
1
;
Wenhuan HUI
1
;
Tiantian YANG
1
Author Information
1. Department of Dermatology, the Second Affiliated Hospital of Xi’an Jiaotong University, Xi’an 710004, China
- Publication Type:Journal Article
- Keywords:
Pemphigus;
Family Members;
Caregiver;
Emotional Experience;
Qualitative Study
- From:
Chinese Medical Ethics
2023;36(5):556-560
- CountryChina
- Language:Chinese
-
Abstract:
【Objective:】 To study the emotional experience of family caregivers of patients with Pemphigus, and to provide reference for them to formulate targeted intervention and support. 【Methods:】 Using the phenomenological research method in qualitative research and purposive sampling method, in-depth semi-structured interviews were conducted with 13 family caregivers of patients with pemphigus from September 2021 to June 2022. Colaizzi analysis method was used for data analysis. 【Results:】 The emotional experience of family caregivers of inpatients with pemphigus was summarized into five themes: lack of cognition, high financial and psychological burden, more concerns about the use of hormone drugs in treatment, provide positive guidance and support for patients, negative effect on the quality of life. 【Conclusion:】 Nursing staff should pay attention to the emotional experience of family caregivers, enhance disease knowledge and medication explanation, conduct psychological counseling, and increase treatment confidence, so as to achieve the purpose of promoting the rehabilitation of patients.
