1.Research of health education needs for parents of children with attention deficit hyperactivity disorder
Chinese Journal of Practical Nursing 2015;31(7):528-530
Objective In order to assist the medical staff to take appropriate contents and ways of health education,and to promote the recovery of physical and mental health of children with attention deficit hyperactivity disorder (ADHD),the needs of the parents about how to help them acquire the related knowledge were investigated.Methods A survey on the degree of familiarity of nursing knowledge,the requirements and the ways for getting the knowledge about the health education was carried out.Results The rate of 226 parents who knew about nursing knowledge was 10.62%-87.61% (24/226-198/226).More than half of the parents needed health education.The rates of concerns were as follows,92.48% (209/226) of all the parents concerned on the factors affecting prognosis,94.69%(214/226) on the comorbidities,92.04% (208/226) on the training methods of attention,and 91.15% (206/226) on psychological and behavioral interventions.Conclusions Parents could acquire related knowledge and educational methods about ADHD from the medical staff and afford a good care,which may improve behavior problems and mental health of the children with ADHD.
2.A phenomenological study on benefit finding of patients with age-related macular degeneration under adaptive challenges
Yuefang RONG ; Jianli QIN ; Ling QIN ; Xiaoyun XU
Chinese Journal of Practical Nursing 2024;40(5):380-385
Objective:To find benefit of adaptive challenges in age-related macular degeneration (AMD) patients of long-term treatment in the challenge of vision decline, and provide new ideas for improving the quality of life of patients.Methods:It was a phenomenological study from qualitative research, selected by purpose sampling method and semi-structured interview which involved 20 AMD patients who received intravitreal treatment of drug in the Ophthalmology Department of Affiliated Hospital of Nantong University from January to March 2023.Two interviewees comprehensively read and analyzed the transcript of the interview and its meaning, subsequently Colaizzi seven-step analysis method was used to classify and encode the transcribed data.Results:Among 20 patients, there were 9 males and 11 females, aged 56-81 years old. Patients with AMD experience a sense of benefit in their long-term management of the condition, adapting to the challenges posed by declining strength, which could be summarized into four main themes: moderate sense of decision control, satisfactory social support, active self-management of the disease, and an improvement in quality of life.Conclusions:Patients with AMD experience a sense of disease-related benefit during the long-term management of visual acuity challenges. Healthcare professionals should guide patients to seek this benefit from adverse events, identify the adaptive challenges patients face, and leverage their adaptive leadership skills. Furthermore, offering multi-channel low vision rehabilitation services can assist patients in enhancing their adaptive capabilities, ultimately contributing to further improving their quality of life.
3.Qualitative study on the factors affecting the compliance of hormone replacement therapy in children with short stature
Yuefang RONG ; Anwei XIE ; Xiaoyun XU ; Ermei MIAO
Chinese Journal of Modern Nursing 2020;26(28):3888-3893
Objective:To explore the factors affecting the compliance with hormone replacement therapy in children with short stature.Methods:Totally 14 parents of 14 children with short stature who had poor compliance with hormone replacement therapy in the Affiliated Hospital of Nantong University from August to December 2018 were selected by purposive sampling and received semi-structured interview. Colaizzi's 7-step analysis was used to analyze the data.Results:The factors affecting children's compliance with hormone replacement therapy were summarized into 4 themes, namely, parents' failure to cope with the disease, the psychological and physical problems of the children, the excessive financial burden, and the lack of humanistic care.Conclusions:The compliance with hormone replacement therapy in children with short stature is affected by many factors such as their own and social factors. Medical and nursing staff should pay special attention and provide personalized continuous care, and pay attention to humanistic care to improve their treatment compliance and achieve ideal treatment effects.