1.Aseptic meningitis associated with primary Sj?gren′s syndrome: a case report
Rui BAN ; Hongzhi GUAN ; Xinying HUANG ; Xunzhe YANG ; Yingmai YANG ; Sixian CHEN ; Yicheng ZHU
Chinese Journal of Neurology 2024;57(2):171-175
Sj?gren′s syndrome is a chronic autoimmune inflammatory disease characterized by exocrine gland and extraglandular involvement. Cases of Sj?gren′s syndrome-associated aseptic meningitis (SS-AM) are relatively rare, and a case of recurrent aseptic meningitis with leukopenia and mild anemia associated with primary Sj?gren′s syndrome is reported, whose symptoms basically disappeared after treatment with prednison and hydroxychloroquine. The purpose of reporting this case is to raise awareness of SS-AM among fellow clinicians.
2.Qualitative research on caregiving feelings and needs of caregivers of children with β-thalassemia major
Xiufen SHANG ; Yicheng BAN ; Qingmei LU ; Yingxin LIU ; Ying LIANG ; Hongxing YE ; Xiupin HUANG
Chinese Journal of Modern Nursing 2024;30(14):1928-1932
Objective:To explore the caregiving feelings and needs of caregivers of children with β-thalassemia major.Methods:A semi-structured interview was conducted with 14 caregivers of children with β-thalassemia major who were treated at the Affiliated Hospital of Youjiang Medical University for Nationalities from December 2022 to March 2023, and the data were analyzed using the Colaizzi 7-step analysis method.Results:Caregivers of children with β-thalassemia major felt a greater burden of care, including declining physical and mental health, disruption of daily life rhythms and heavy financial burden. And their caregiving needs included psychological and emotional support, guidance on the physical and mental health of children, assurance of a stable blood supply and medical and social support.Conclusions:Caregivers of children with β-thalassemia major have a heavy burden of care and face various nursing difficulties in the daily care of children. Medical staff should actively take measures to meet their care needs and improve their care quality and quality of life.