1.Illness Experiences of People with Young-onset Dementia
Journal of Korean Academy of Psychiatric and Mental Health Nursing 2023;32(1):67-77
Purpose:
The purpose of this qualitative study was to describe the illness experiences of people with young-onset dementia who live in a community.
Methods:
Six community-dwelling patients with young-onset dementia, aged 65 or under, were recruited. Data were collected from August 2019 to July 2020 and analyzed using qualitative thematic analysis.
Results:
The data were classified into five themes and eleven sub-themes. The following themes emerged: 1) Anguish enough to want to die from dementia symptoms that hit the prime of one's life; 2) Being thrown from middle age to old age; 3) Becoming a burden due to changing roles within the family; 4) Experiencing difficulties in the diagnosis and treatment process due to onset before old age; and 5) Living with young-onset dementia in one's own life.
Conclusion
The findings suggest that people with young-onset dementia have unique experiences associated with middle age Korean traits. Therefore, based on their illness experiences, effective psychosocial nursing interventions tailored to their age should be developed.
2.Healthcare Professionals’ Experience of Fear of Cancer Recurrence among Cancer Survivors
Ka Ryeong BAE ; Yeojin AHN ; Juhee CHO
Asian Oncology Nursing 2020;20(4):179-188
Purpose:
The purpose of this study is to explore healthcare professionals’ experience of talking about the fear of cancer recurrence with cancer survivors.
Methods:
Semi-structured in-depth interviews were conducted with 15 healthcare professionals at two university hospitals in South Korea from August to September 2019. Interviewed healthcare professionals were oncologists and oncology nurses who had at least five years of experience in caring for cancer survivors. Interviews were recorded and transcribed for qualitative content analysis.
Results:
Participants agreed that most cancer survivors experience fear of cancer recurrence on some level.However, health care professionals rarely heard the word ‘recurrence’ directly from cancer survivors, and they responded to cancer survivors’ concern about recurrence differently. Some of them intervened in the cancer survivors’ problems actively but some had minimum communication with cancer survivors. Health professionals believed that interventions were necessary not only for the survivors but also for themselves.
Conclusion
Healthcare professionals need education or training on how to respond to and manage cancer survivors’ fear of recurrence in clinical settings, considering its impact on survivors’ quality of life.
3.Effectiveness of Self-Assessment, TAilored Information, and Lifestyle Management for Cancer Patients’ Returning to Work (START): A Multi-center, Randomized Controlled Trial
Danbee KANG ; Ka Ryeong BAE ; Yeojin AHN ; Nayeon KIM ; Seok Jin NAM ; Jeong Eon LEE ; Se Kyung LEE ; Young Mog SHIM ; Dong Hyun SINN ; Seung Yeop OH ; Mison CHUN ; Jaesung HEO ; Juhee CHO
Cancer Research and Treatment 2023;55(2):419-428
Purpose:
We developed a comprehensive return to work (RTW) intervention covering physical, psycho-social and practical issues for patients newly diagnosed and evaluated its efficacy in terms of RTW.
Materials and Methods:
A multi-center randomized controlled trial was done to evaluate the efficacy of the intervention conducted at two university-based cancer centers in Korea. The intervention program comprised educational material at diagnosis, a face-to-face educational session at completion of active treatment, and three individualized telephone counseling sessions. The control group received other education at enrollment.
Results:
At 1-month post-intervention (T2), the intervention group was more likely to be working compared to the control group after controlling working status at diagnosis (65.4% vs. 55.9%, p=0.037). Among patients who did not work at baseline, the intervention group was 1.99-times more likely to be working at T2. The mean of knowledge score was higher in the intervention group compared to the control group (7.4 vs. 6.8, p=0.029). At the 1-year follow-up, the intervention group was 65% (95% confidence interval, 0.78 to 3.48) more likely to have higher odds for having work.
Conclusion
The intervention improved work-related knowledge and was effective in facilitating cancer patients’ RTW.