1.A Paradigm Analysis Related to Spiritual Experiences Focused on Christian of Patients with Terminal Cancer.
Journal of Korean Academy of Nursing 2006;36(2):299-309
PURPOSE: The main purpose of this study was to develop a substantive theory on the process of the spiritual experience in Christian terminal cancer patients in the context of Korean society and culture. The question for the study was 'What is the spiritual process in Christian terminal cancer patients?'. METHOD: The research method used was the Grounded Theory Method developed by Strauss and Corbin (1998). Participants for this study in total were 9 Christian terminal cancer patients. Data was collected using in-depth interviews during April 2003 to March. 2004. Data collection and analysis were carried out at the same time. RESULT: From the analysis 58 concepts and 20 categories emerged. The categories were presented into a paradigm, which consisted of condition-actions/ interactions-consequences. The theoretical scheme was described by organizing categories. In total, 4 stages were developed from the condition-actions/ interactions-consequences. Throughout these stages, the 'overcoming process of unbalanced interconnectedness' was the core category discovered. CONCLUSION: This study provides a framework for the development of individualized care interventions in the 'overcoming process of unbalanced interconnectedness' for Christian terminal cancer patients.
Christianity
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Humans
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Neoplasms/*psychology
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*Spirituality
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Terminally Ill/*psychology
2.Effects of Dignity Interventions on Psychosocial and Existential Distress in Terminally ill Patients: A Meta-analysis.
Journal of Korean Academy of Nursing 2014;44(5):471-483
PURPOSE: This study was done to evaluate the effects of dignity interventions on depression, anxiety and meaning of life in terminally ill patients. METHODS: PubMed, Cochrane Library CENTRAL, EMBASE, CINAHL and several Korean databases were searched. The main search strategy combined terms indicating dignity intervention, presence of terminal illness and study design. Methodological quality was assessed using Cochrane's Risk of Bias for randomized studies and Risk of Bias Assessment tool for non randomized studies. Data were analyzed by the RevMan 5.2.11 program of Cochrane Library. RESULTS: Twelve clinical trials met the inclusion criteria with a total of 878 participants. Dignity intervention was conducted for a mean of 2.2 weeks, 2.8 sessions and an average of 48.7 minutes per session. Effect sizes were heterogeneous and subgroup analysis was done. Dignity interventions had a significant effect on depression (ES= -1.05, p<.001, I2=15%) and anxiety (ES= -1.01, p<.001, I2=0). For meaning of life, dignity interventions were effective (ES= -1.64, p=.005) and effect sizes were still heterogeneous. CONCLUSION: Results support findings that dignity interventions can assist terminal ill patients in reducing emotional distress and improving meaning of life. Further well-designed dignity studies will lead to better understanding of the effects of treatments on spiritual well-being.
Clinical Trials as Topic
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Databases, Factual
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Depression/*therapy
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Humans
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Psychotherapy
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Quality of Life
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*Self Concept
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Terminally Ill/*psychology
3.Feasibility Study of Physician Orders for Life-Sustaining Treatment for Patients with Terminal Cancer
Ho Jung AN ; Hyun Jeong JEON ; Sang Hoon CHUN ; Hyun Ae JUNG ; Hee Kyung AHN ; Kyung Hee LEE ; Min Ho KIM ; Ju Hee KIM ; Jaekyung CHEON ; JinShil KIM ; Su Jin KOH
Cancer Research and Treatment 2019;51(4):1632-1638
PURPOSE: Physician Orders for Life-Sustaining Treatment (POLST) form is a legal document for terminally ill patients to make medical decisions with physicians near the end-of-life. A multicenter prospective study was conducted to evaluate the feasibility of POLST administration in actual oncological practice. MATERIALS AND METHODS: Patients with terminal cancer, age ≥ 20 years, and capable of communicating were eligible. The primary endpoint was the completion rate of POLST. Data about physicians' or patients' barriers were also collected. RESULTS: From June to December 2017, 336 patients from seven hospitals were eligible. Median patient age was 66 years (range, 20 to 94 years); 52.7% were male; and 60.4% had poor performance status. Primary cancer sites were hepato-pancreato-biliary (26.2%), lung (23.2%), and gastrointestinal (19.9%). Expected survival duration was 10.6±7.3 weeks, with 41.2% receiving hospice care, 37.9% showing progression after cancer treatment, and the remaining patients were under active treatment (15.8%) or initially diagnosed with terminal cancer (5.1%). POLST forms were introduced to 60.1% of patients, and 31.3% signed the form. Physicians' barriers were reluctance of family (49.7%), lack of rapport (44.8%), patients' denial of prognosis (34.3%), lack of time (22.7%), guilty feelings (21.5%), and uncertainty about either prognosis (21.0%) or the right time to discuss POLST (16.6%). The patients' barriers were the lack of knowledge/understanding of POLST (65.1%), emotional discomfort (63.5%), difficulty in decision-making (66.7%), or denial of prognosis (14.3%). CONCLUSION: One-third of patients completed POLST forms, and various barriers were identified. To overcome such barriers, social engagement, education, and systematic support might be necessary.
Denial (Psychology)
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Education
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Feasibility Studies
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Hospice Care
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Humans
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Lung
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Male
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Prognosis
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Prospective Studies
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Terminally Ill
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Uncertainty
4.A Comparison of Perceived Nursing Needs among Oncology Nurses, Patients with Non-terminal Cancer and Patients with Terminal Cancer.
Journal of Korean Academy of Nursing 2005;35(6):1135-1143
PURPOSE: The purpose of this study was to compare the perceived importance and the perceived caring of nursing needs among oncology nurses, patients with non-terminal cancer and patients with terminal cancer. METHOD: A total of 83 oncology nurses, 56 patients with non-terminal cancer and 39 patients with terminal cancer served as subjects. Data was collected based on the 4-point Likert scale using a self-administered questionnaire from Mar. to Sept. 2004. Finally, data was analyzed using mean, SD, paired-test, and ANOVA. RESULTS: The score of the perceived importance of nursing needs was higher than that of the perceived performance of nursing needs in all three groups. There was also a difference in the degree of perceived performance of nursing needs among the three groups. In contrast, there was no difference in the total score of the perceived importance of nursing needs among the three groups, unlike the importance of informational and physical needs as a subgroup of perceived importance, where a difference was noted. CONCLUSIONS: Strategies should be developed to narrow down these gaps between nurses and patients. In particular, informational and educational programs should be designed for patients with terminal cancer.
Terminally Ill/*psychology
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*Oncologic Nursing
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Nursing Care/*psychology
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Neoplasms/*nursing/psychology
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Middle Aged
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Male
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Humans
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Female
;
Adult
5.Effects of a Short-term Life Review on Spiritual Well-being, Depression, and Anxiety in Terminally Ill Cancer Patients.
Sung Hee AHN ; Young Lan AN ; Yang Sook YOO ; Michiyo ANDO ; Soo Jin YOON
Journal of Korean Academy of Nursing 2012;42(1):28-35
PURPOSE: This study was done to evaluate the effects of a short-term life review on spiritual well-being, depression, and anxiety in patients with terminal cancer. METHODS: The study used a pre posttest quasi experimental design with a nonequivalent control group. Measurement instruments included the Functional Assessment of Chronic Illness Therapy-Spiritual scale (FACIT-Sp12) and the Hospital Anxiety and Depression Scale (HADS). Participants were 32 patients with terminal cancer who were receiving chemotherapy or palliative care at hospitals or at home. Eighteen patients were assigned to the experimental group and 14 to the control group. A sixty minute short-term life review session was held twice a week as the intervention with the experimental group. RESULTS: There was a statistically significant increase in spiritual well-being in the experimental group compared to the control group. There were also significant decreases in depression and anxiety in the experimental group compared to the control group. CONCLUSION: The results indicate that a short-term life review can be used as a nursing intervention for enhancing the spiritual well-being of patients with terminal cancer.
Aged
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*Anxiety
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Chronic Disease
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*Depression
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Female
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Humans
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Interviews as Topic
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Male
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Middle Aged
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Neoplasms/*psychology
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Palliative Care
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*Spirituality
;
Terminally Ill
6.Family Decision-Making to Withdraw Life-Sustaining Treatment for Terminally-Ill Patients in an Unconscious State.
Myung Hee KIM ; Eun Hee KANG ; Mi Young KIM
Korean Journal of Hospice and Palliative Care 2012;15(3):147-154
PURPOSE: The purpose of this study is to understand family members' experience of deciding to withdraw life-sustaining treatments for terminally-ill patients in an unconscious state. METHODS: Data were collected by performing an in-depth interview with eight terminally-ill patients' family members who decided to withdraw life-sustaining treatments. Colaizzi's phenomenological method was used for data analysis. RESULTS: Questions were classified into 12 groups and finally into five categories. The five categories were about family members' frustration with patient's condition, emotional preparation for the patient's death upon medical professionals' recommendation, patient's wishes, exhaustion due to caring and past experiences related to life-sustaining treatment. CONCLUSION: Using the five categories, hospice and palliative professionals could better understand family members' decision making experience of withdrawing life-sustaining treatments for terminally-ill patients. Based on that, the family members could be provided with appropriate counseling and care, which in turn could improve hospice and palliative care intervention.
Counseling
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Decision Making
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Frustration
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Hospices
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Humans
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Palliative Care
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Qualitative Research
;
Terminally Ill
;
Unconscious (Psychology)
;
Unconsciousness
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Withholding Treatment
7.Experiences of Family Caregivers of Patients with Terminal Cancer.
Journal of Korean Academy of Nursing 2012;42(2):280-290
PURPOSE: This study done to identify the experiences of families caring for patients with terminal cancer. The question was, "What is the caregiving experience of a family who has a member with terminal cancer?" METHODS: Grounded Theory was applied and in-depth interviews were done with 11 family members. Interviews were recorded with the interviewees' consent and were transcribed and analyzed. Participants' relationships to patients were 6 spouses, 4 daughters, and 1 mother. The ages of the participants were between 32 and 62, with an average of 47.5. RESULTS: The study showed "enduring with bonds" as the main category and the main factor affecting this category was the "patients' diagnosis of terminal cancer." The caregiving experience was divided into four stages: shock, confusion, struggle, and acceptance. Mediating factors were relationship with the patient, intimacy with the patient, social support, communication, and trust. Conclusively, participants underwent internal maturity, and changes occurred in family and social and personal life. CONCLUSION: The families took care of the patients with responsibility and love. The study results should help with the understanding of a family with a member with terminal cancer and should be used to develop nursing, mediating, and consulting programs for these caregivers.
Adult
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Caregivers/*psychology
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Communication
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Female
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Humans
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Interviews as Topic
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Male
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Middle Aged
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Neoplasms/pathology
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Social Support
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*Terminal Care
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Terminally Ill
9.Experience in Acceptance of Hospice by Patients with Terminal Cancer : A Phenomenological Research.
Su Young KWAK ; Byoung Sook LEE
Journal of Korean Academy of Nursing 2013;43(6):781-790
PURPOSE: The purpose of this study was to further understanding of the experience in acceptance of hospice by patients with terminal cancer and to explore the structure of this experience. METHODS: A phenomenological methodology was used for the study. Participants were nine patients who were admitted to the hospice unit of a university hospital. In-depth interviews were done for data collection and the data were analyzed using Colaizzi's method. RESULTS: Four categories, eight theme clusters and 18 themes were identified for the experience in acceptance of hospice by patients with terminal cancer. The three categories were 'Hope for a comfortable death', 'Overcoming barrier of prejudice about hospice', 'Incessant craving for life', 'The last consideration for self and family'. CONCLUSION: While accepting the hospice care, participants experienced inner conflict between giving up medical treatments that prolong life and choosing a comfortable death, and also experienced an incessant craving for life. By accepting hospice care, they showed a human dignity that entails careful concerns for both self and family members.
Adaptation, Psychological
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Adult
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Aged
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Caregivers/psychology
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Female
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*Hospice Care
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Hospitals, University
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Humans
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Interviews as Topic
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Male
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Middle Aged
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Neoplasms/*psychology
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*Qualitative Research
;
Terminally Ill
10.Symptom Features of Terminally Ill Cancer Patients and Depression of Family Caregivers.
Hyo Min KIM ; Su Jin KOH ; In Cheol HWANG ; Youn Seon CHOI ; Sun Wook HWANG ; Yong Joo LEE ; Young Sung KIM
Korean Journal of Hospice and Palliative Care 2017;20(3):188-193
PURPOSE: There has been very little study on the associations between patient's symptoms themselves and family caregiver (FC)'s depression in the palliative phase. This cross-sectional study was to investigate the relationship between symptom features of terminally ill cancer patients and their FC's depression. METHODS: We performed a multicenter survey using the MD Anderson symptom inventory and the Hospital Anxiety and Depression Scale. A total of 293 patient-FC pairs were recruited from seven tertiary medical centers. A multivariate regression analysis was applied for identifying the relevant factors associated with FC depression and for estimating adjusted depression score of FCs. RESULTS: Among various psychosocial factors, low FC quality of life, low social support, spouse, and more caregiving time were significantly associated with FCs' depression. According to the presence of FCs' depression, there were significant differences in some symptom characteristics of patients. Even after adjusting for the relevant confounders, depression scores were lower in FCs caring for patients who had negative symptoms (loss of appetite, P=0.005; drowsiness, P=0.024; and dry mouth, P=0.043) than in FCs caring for patients who had not. FCs caring for patients with severe appetite loss had lower depression scores than those with not severe one (P=0.039). CONCLUSION: Our result suggests that patient's symptom characteristics might be helpful when evaluating a FC's depression.
Anxiety
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Appetite
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Caregivers*
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Cross-Sectional Studies
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Depression*
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Humans
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Mouth
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Psychology
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Quality of Life
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Sleep Stages
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Spouses
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Symptom Assessment
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Terminal Care
;
Terminally Ill*