1.PILL series. Not that way: advance care planning.
Singapore medical journal 2015;56(1):19-quiz 22
Advance care planning (ACP) is a process of discussion of healthcare decisions with regard to a patient's future health and personal care, should they become unable to make or communicate their own decisions in the future. ACP can be as simple as a chat about the patient's end-of-life wishes with their trusted loved ones, and may involve their doctors, organisations and trained facilitators. The process can be documented with available online resources, such as structured tools. Family physicians, with whom patients share unique therapeutic relationships, are in the best position to introduce and start the ACP conversation with their patients.
Advance Care Planning
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Cultural Characteristics
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Decision Making
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Humans
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Living Wills
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Physicians, Family
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Professional-Patient Relations
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Singapore
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Terminal Care
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methods
2.Involvement of practice nurses and allied health professionals in the development and management of care planning processes for patients with chronic disease – A pilot study
Jones KM ; Adaji A ; Schattner PS
Malaysian Family Physician 2014;9(1):8-15
Medicare items were introduced in 2005 to encourage general practitioners (GPs) to involve other healthcare providers in the management of patients with chronic
disease. However, there appears to be barriers to converting financial incentives and the use of
information technology as a communication tool to better patient outcomes. The aim of this study was to explore these barriers from the perspectives of practice nurses and allied health practitioners. Three focus groups were held, comprising a convenience sample of 10 practice nurses
and 17 allied health professionals from south-east Melbourne. Findings were reported under five themes: (1) attitudes and beliefs, (2) communication using care planning documents, (3) electronic communication, (4) care
planning and collaboration between healthcare professionals and (5) ongoing challenges. While allied professionals use care planning tools, there is confusion about the extent to which these tools are for the GPs to provide structured care to assist with communication or funding mechanisms for allied health services. Further research is needed on the contributions of these groups to the care planning process and how communication and
collaboration between healthcare professionals can be strengthened.
Communication
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Patient Care Planning
3.Consensus guidelines for the definition of the end stage of disease and last days of life and criteria for medical judgment
Sang Min LEE ; Su Jung KIM ; Youn Seon CHOI ; Dae Seog HEO ; Sujin BAIK ; Bo Moon CHOI ; Daekyun KIM ; Jae Young MOON ; So Young PARK ; Yoon Jung CHANG ; In Cheol HWANG ; Jung Hye KWON ; Sun Hyun KIM ; Yu Jung KIM ; Jeanno PARK ; Ho Jung AHN ; Hyun Woo LEE ; Ivo KWON ; Do Kyong KIM ; Ock Joo KIM ; Sang Ho YOO ; Yoo Seock CHEONG ; Younsuck KOH
Journal of the Korean Medical Association 2018;61(8):509-521
In Korea, the Hospice, Palliative Care, and Life-sustaining Treatment Decision-making Act was enacted in February 2016 in order to ensure that the patient's self-determination in end-of-life care processes is respected. To enhance physicians' understanding of this act and to provide proper criteria for medical judgment in variety of clinical settings, consensus guidelines were published in November 2016. In this article, the characteristics of these guidelines and related issues regarding the definitions of ‘the end stage of disease’ and ‘last days of life’ and the criteria for medical judgment are presented and summarized. According to the guidelines, the term ‘end stage of disease’ refers to a state in which there is no possibility of a fundamental recovery and the symptoms are expected to worsen within months. The terms ‘the last days of life’ and ‘the final days of life’ refer to a state in which, despite treatment, the patient's condition is worsening and death is impending, with no possibility of recovery. The attending physician and another relevant specialist should both judge a patient's medical condition as either ‘end stage of disease’ for hospice/palliative care or ‘the last days of life’ for dying patient care according to the law. Caregivers should provide appropriate medical information to eligible patients for palliative or ‘end stage of disease’ care through advance care planning. Therefore, it is critically necessary that caregivers understand the legitimate process of hospice/palliative and dying patient care based on the patient's wishes and best interests. Physicians should apply these consensus guidelines to eligible patients considering their clinical course and the patients' wishes.
Advance Care Planning
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Caregivers
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Consensus
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Hospices
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Humans
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Judgment
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Jurisprudence
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Korea
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Palliative Care
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Patient Care
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Specialization
4.The Current Status of End-of-Life Care in Korea and Legislation of Well-Dying Act.
Ji Eun LEE ; Ae Jin GOO ; Be Long CHO
Journal of the Korean Geriatrics Society 2016;20(2):65-70
Recently, the Well-dying Act was legislated in Korea, and it will come into force in 2018. The rapid aging of this society has made many older patients and their families suffer from pain and disability for a long time towards the end of life. Hospice care, when compared to life-sustaining treatment, can relieve such burdens. Regarding the decision of choosing hospice care at the end of life, advance care planning and advance directives can help people express their preference beforehand. In Korea, hospice care is still not actively used and most patients endure life-sustaining treatment until death. Many patients want hospice care, but there has not been a legal basis for such a decision, leading to social conflict and many legal problems. The Well-dying Act will provide a legal basis for such a decision. This will help establish and promote hospice care in Korea. However, sufficient discussion and preparation are required before enforcing the Act.
Advance Care Planning
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Advance Directives
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Aging
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Hospice Care
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Humans
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Korea*
5.Awareness and Attitudes Toward Advance Directives among Korean Adults.
Journal of Korean Academy of Fundamental Nursing 2010;17(4):450-459
PURPOSE: The purposes of this study were to identify awareness and attitudes toward advance directives (ADs) among Korean adults and to examine various opinions in the utilization of ADs among young, middle-aged, and older adults. METHODS: Data were collected using a structured questionnaire from 384 adults selected by a quota sampling method on the basis of age. RESULTS: The majority of participants preferred that they themselves would be the primary decision maker. Most of them were unaware of the option of ADs but supported the utilization of ADs. Most of the participants preferred detailed descriptions on end-of-life decisions in ADs but wanted to allow some leeway in following it. Significant differences were found among age groups in terms of the preferences regarding the utilization of ADs. CONCLUSION: It is suggested that nurses make efforts to educate the general public about ADs and facilitate advance care planning, which focuses on the process of communication on end-of-life preferences within the social network of relationships.
Adult
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Advance Care Planning
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Advance Directives
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Humans
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Surveys and Questionnaires
6.The Preference for Care Near the End of Life of Korean Nurses.
Hyun Sook KIM ; Shinmi KIM ; Su Jeong YU ; Moungok KIM
Korean Journal of Hospice and Palliative Care 2010;13(1):41-49
PURPOSE: This study was performed to explore the preference for care near the end-of-life of nurses who had been working in an acute hospital. s METHODS: Data were collected by using PCEOL-K which was originally developed in U.S. and standardized into Korean version. Two hundred nurses from one acute hospital who agreed to participate in the study filled out questionnaires and 177 questionnaires were analyzed for the study results. RESULTS: Relatively positive preference toward spirituality and pain control and negative preference toward decision making by health care professional were uncovered. CONCLUSION: Nurses consider patient's autonomy, pain control and spirituality as important factors at the end-of-life care. Further studies regarding the preference for the care near the end-of-life of diverse groups such as patients, doctors, and family members are called for.
Advance Care Planning
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Decision Making
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Delivery of Health Care
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Humans
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Patient Preference
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Spirituality
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Surveys and Questionnaires
7.Recognition of Advance Directives by Advanced Cancer Patients and Medical Doctors in Hospice Care Ward.
Der Sheng SUN ; Yeon Joo CHUN ; Jeong Hwa LEE ; Sang Hyun GIL ; Byoung Yong SHIM ; Ok Kyung LEE ; In Soon JUNG ; Hoon Kyo KIM
Korean Journal of Hospice and Palliative Care 2009;12(1):20-26
PURPOSE: We undertook this study to find out the recognitions of terminal cancer patients and doctors about advance directives (ADs), of how they would do in non-response medical conditions and whether ADs could be one of medical options for their dying with dignity. METHODS: One hundred thirty four cancer patients in the Hospice Unit, St. Vincent's Hospital, and 97 medical doctors in the Department of Internal Medicine, Catholic Medical Center, were asked about ADs, including Do-Not-Resuscitate (DNR), medical power of attorney, living will and medical options. RESULTS: One hundred thirty patients (97%) and 38 doctors (39.2%) were unfamiliar with ADs, however, 128 patients (95.5%), 95 doctors (97.9%) agreed with it. Seventy nine patients (59.0%) and 96 doctors (99.0%) wanted DNR rather then intensive treatments if they were in non-response medical conditions. Eighty four patients (62.7%) and 75 doctors (77.3%) were agreeable to medical power of attorney. One hundred Thirty four patients (100.0%) and 94 doctors (96.9%) did not want medical options to be in terminal conditions, and hoped to die in peace. CONCLUSION: Most of patients did not know about ADs and how to make it. However, they showed positive attitudes about it. If we advertise it properly, it is highly likely that a large number of cancer patients would make their living wills easily by ADs. Nevertheless, many legal and ethical problems have to be solved. Doctors should engage their patients in an ongoing communication about the end-of-life. Therefore, let the patients have opportunities to plan their own deaths.
Advance Directives
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Hospice Care
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Hospices
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Humans
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Internal Medicine
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Linear Energy Transfer
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Living Wills
8.Awareness and Attitudes of Community-Dwelling Individuals in Singapore towards Participating in Advance Care Planning.
Qin Xiang NG ; Tricia Zl KUAH ; Germaine Jm LOO ; Wilbert Hh HO ; Norbert L WAGNER ; Judy Gk SNG ; Grace Mj YANG ; Bee Choo TAI
Annals of the Academy of Medicine, Singapore 2017;46(3):84-90
INTRODUCTIONAdvance care planning (ACP) is an important aspect of end-of-life care that has been shown to improve patient autonomy in decision-making and reduce stress for surviving family members. Given the rapidly ageing population in Singapore, a greater emphasis on end-of-life care planning is needed. This study therefore sought to examine the awareness and attitudes of the general Singaporean community towards participating in ACP, which are not known hitherto.
MATERIALS AND METHODSA 24-item interviewer-administered questionnaire was constructed and administered via door-to-door survey amongst community-dwelling residents living in Housing and Development Board (HDB) flats across Singapore, selected via a two-stage stratified random sampling.
RESULTSOf the 406 completed surveys, 14.4% of respondents had heard of ACP (n = 58), mostly through the media (67.9%), from family and friends (21.4%) and healthcare providers (21.4%). Only 26.8% of those who had previously heard of ACP knew how to begin an ACP discussion and 12.5% of them had a prior ACP discussion. After education, the majority of respondents were willing to begin an ACP discussion (n = 236, 60.1%). Being of an older age, having a life threatening illness, and having more knowledge about ACP were significant factors associated with willingness to have an ACP discussion. Barriers included perceiving oneself as still healthy and preferring the family to make decisions instead.
CONCLUSIONThere is a low awareness but high expressed willingness to engage in an ACP discussion amongst the Singaporean community. More efforts are needed to educate the public about ACP, engage the family unit and correct the present misconceptions.
Advance Care Planning ; Age Factors ; Health Knowledge, Attitudes, Practice ; Humans ; Independent Living ; Patient Acceptance of Health Care ; Singapore ; Surveys and Questionnaires ; Terminal Care
9.Duration of and fee for comprehensive assessment and care planning for patients with hypertension and/or diabetes in primary care.
Jeehye LEE ; Yong Jun CHOI ; Ah Reum AN ; Yoon KIM
Journal of the Korean Medical Association 2017;60(1):72-80
The enhanced primary care demonstration (EPD) was launched in November 2014 to provide high-quality care for people with chronic illnesses. In the EPD, comprehensive assessment and care planning (CAP) is a critical component, along with behavior modification and case management services. In this study, we measured CAP duration and calculated the fee for CAP sessions performed with patients with hypertension and/or diabetes mellitus. In 5 primary care clinics participating in the EPD, the duration of CAP sessions and usual consultations was measured. The duration of CAP sessions was measured on 2 separate occasions because CAP involves 2 separate consultations, including an initial consultation for comprehensive patient assessment and laboratory testing and a follow-up consultation for creating a care plan based on the assessment and test results. The CAP fee was calculated as the ratio of CAP time to the usual consultation time. The median (interquartile range) and the mean ± standard deviation of CAP duration were 15.4 (7.1) minutes and 15.6 ± 4.2 minutes, respectively. The first and second CAP sessions lasted for 5.3 and 4.6 times longer than usual consultations, respectively. The calculated CAP fees were 76,299 won (median) and 65,766 won (mean). The length of CAP sessions for patients with hypertension and/or diabetes mellitus was approximately 5 times longer than that of usual consultations. If consultation lengths were measured in a representative patient sample, it would be possible to improve the external validity of the measurements.
Behavior Therapy
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Case Management
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Chronic Disease
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Diabetes Mellitus
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Diagnosis
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Fees and Charges*
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Fees, Medical
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Follow-Up Studies
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Humans
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Hypertension*
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Patient Care Planning
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Primary Health Care*
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Referral and Consultation
10.Duration of and fee for comprehensive assessment and care planning for patients with hypertension and/or diabetes in primary care.
Jeehye LEE ; Yong Jun CHOI ; Ah Reum AN ; Yoon KIM
Journal of the Korean Medical Association 2017;60(1):72-80
The enhanced primary care demonstration (EPD) was launched in November 2014 to provide high-quality care for people with chronic illnesses. In the EPD, comprehensive assessment and care planning (CAP) is a critical component, along with behavior modification and case management services. In this study, we measured CAP duration and calculated the fee for CAP sessions performed with patients with hypertension and/or diabetes mellitus. In 5 primary care clinics participating in the EPD, the duration of CAP sessions and usual consultations was measured. The duration of CAP sessions was measured on 2 separate occasions because CAP involves 2 separate consultations, including an initial consultation for comprehensive patient assessment and laboratory testing and a follow-up consultation for creating a care plan based on the assessment and test results. The CAP fee was calculated as the ratio of CAP time to the usual consultation time. The median (interquartile range) and the mean ± standard deviation of CAP duration were 15.4 (7.1) minutes and 15.6 ± 4.2 minutes, respectively. The first and second CAP sessions lasted for 5.3 and 4.6 times longer than usual consultations, respectively. The calculated CAP fees were 76,299 won (median) and 65,766 won (mean). The length of CAP sessions for patients with hypertension and/or diabetes mellitus was approximately 5 times longer than that of usual consultations. If consultation lengths were measured in a representative patient sample, it would be possible to improve the external validity of the measurements.
Behavior Therapy
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Case Management
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Chronic Disease
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Diabetes Mellitus
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Diagnosis
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Fees and Charges*
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Fees, Medical
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Follow-Up Studies
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Humans
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Hypertension*
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Patient Care Planning
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Primary Health Care*
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Referral and Consultation