1.A study on the lived experience of patients with hemophilia.
Won Ock KIM ; Keum Ja GO ; Hyun Sook KANG
Journal of Korean Academy of Fundamental Nursing 2000;7(1):30-41
This study was done to provide a firsthand description and analysis of phenomenological data of the singular, subjective and lived experience of patients with hemophilia. Sixe patients suffering from hemophilia were selected for this study. Data were collected from May to August, 1999 through in-depth interviews. The phenomenological method described by Colaizzi was used for the phenomenogical analysis of the data. After transcribing the recorded interview, the researchers read the data repeatedly to identify significant statements, restated them succinctly, and then formulated meanings, themes, theme clusters, and categories. The formulated meanings were grouped into six categories : fear, loneliness, frustration, sypmtoms of hemophilia, reception of support, and commitment. An exhaustive description of the experience of hemophilia can be deduced from this study. It is as follows: even though patients with hemophilia feel fear, loneliness and frustrations and suffer from symptoms of their disease such as bleeding, pain and functional disorders, they commit themselves to the maintenance of good health and enthusiastic life style with the help of support resources such as family members.
Frustration
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Hemophilia A*
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Hemorrhage
;
Humans
;
Life Style
;
Loneliness
2.The Lives of Daughters-in-Law Who Care for Parents with Dementia.
Hyun Sook KANG ; Keum Ja GO ; Won Ock KIM ; Eun Sim KIM ; Soon Yong KHIM ; Hyun Li KIM ; Soon Ok SHIN ; Sang Eun OH ; Jeong Sook WON ; Chun Yu LI ; Min JUNG ; Nam Hee CHOE
Journal of Korean Academy of Nursing 1999;29(6):1233-1243
This study was done to investigate the lives of the daughters- in- law caring for parents with dementia and participate in their lives through having quality time with them. Data were collected by depth interviews and interpreted through the hermeneutic circle as follows. These daughters-in-law have conflict between social custom and subjective self. They had ambivalence toward their demented partents-in- law and were fighting a battle between rationality and emotions in their mind. These daughters-in law and mothers-in- law did not get along and the parents' dementia aggravated the relationships. They were alienated from their family by the parents with dementia. The indifference of their family especially their husbands, made these subjects live in misery. They cared for the demented mother-in-law with hatred. Even though they had this yoke, there daughters- in-law were not able to throw off the shackles of convention.
Dementia*
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Emigrants and Immigrants
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Humans
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Jurisprudence
;
Parents*
;
Spouses