Objective:To develop a nutritional assessment scale for patients with inflammatory bowel disease and examine its reliability and validity for assessing nutritional literacy in patients with inflammatory bowel disease.Methods:Based on the Nutbeam health literacy stratification model and knowledge-attitude-practice model, a preliminary scale was developed through literature review, semi-structured interviews, expert consultation and pre-surveys. A convenient sampling method was used to select 376 inflammatory bowel disease patients admitted to Tenth People′s Hospital Affiliated to Tongji University from September, 2022 to April, 2023 for questionnaire surveys, and reliability and validity tests were conducted to form the final scale.Results:The nutritional assessment scale for inflammatory bowel disease included 39 items. Exploratory factor analysis identified five common factors: nutritional knowledge, nutritional attitudes, nutritional practices, information interaction ability, and information evaluation ability. These factors explained 65.431% of the total variance. The content validity index of the scale was 0.857, and the item-level content validity index ranged from 0.800 to 1.000. The Cronbach α coefficient of the scale was 0.869, and the Cronbach α coefficients of each dimension ranged from 0.847 to 0.922. Conclusions:The developed nutritional assessment scale for inflammatory bowel disease demonstrates good reliability and validity, allowing for effective evaluation of patients′nutritional status.

Objective To analyze the real experiences of patients with inflammatory bowel disease(IBD)during dietary restrictions,providing references for healthcare personnel to guide patients in standardizing dietary restriction behaviors.Methods Purposeful sampling was employed to select 14 patients with IBD who were treated at a tertiary A hospital in Shanghai between October 2022 and February 2023 for semi-structured in-depth interviews.Data were analyzed using the Colaizzi's 7-step method in phenomenological research.Results 4 themes and 13 sub-themes were extracted.Theme 1:facing multiple physiological challenges(hunger,nutritional imbalance,fatigue and muscle atrophy).Theme 2:experiencing negative psychological disturbances(craving and struggle for gourmet food,diminished zest for life and increased anxiety,feeling embarrassed during social activities).Theme 3:adopting various coping strategies(self-adjustment and adaptation to dietary restrictions,satisfying oral desires through various avenues,seeking knowledge and guidance on nutrition).Theme 4:gaining more growth and support(improved symptom and quality of life,enhanced awareness of dietary health,improved ability to manage diet,receiving support from peers and family).Conclusion The experience of dietary restrictions in IBD patients is complex and varied.Nursing staff should prioritize nutritional risk screening for IBD patients,pay attention to their mental health,provide patients with scientific and personalized dietary guidance,and strengthen social and family support to assist patients in better self-management of their diet.

Objective:To explore the mediating role of social support between mindfulness and perceived pressure in young and middle-aged patients with inflammatory bowel disease (IBD) .Methods:From January to September 2021, the convenient sampling method was adopted to select 350 patients with inflammatory bowel disease who were treated in 5 ClassⅢ Grade A hospitals in Shanghai. The general information questionnaire, Mindful Attention Awareness Scale (MAAS) , Social Support Ratings Scale (SSRS) and Chinese Perceived Stress Scale (CPSS) were used for survey. Pearson correlation analysis was used to test the correlation between variables. AMOS 22.0 was used to establish the structural equation model, the maximum likelihood method was used to fit and modify the data and the Bootstrap method was used to test the mediation effect. A total of 350 questionnaires were distributed in this study and 324 valid questionnaires were recovered, with an effective recovery rate of 92.57%.Results:The total score of perceived stress in young and middle-aged IBD patients was (27.81±3.86) . Social support, mindfulness and perceived stress were negatively correlated ( r=-0.306, -0.220, P<0.01) . Social support played a partial mediating role between mindfulness and perceived stress, accounting for 55.13% of the total effect. Conclusions:The perceived stress level of young and middle-aged IBD patients is relatively high, which is not optimistic. Mindfulness affects perceived stress in young and middle-aged IBD patients through social support. Clinical workers need to pay attention to condition of mindfulness and social support of patients and take targeted psychological interventions to reduce their perceived stress.