1.A Report on an Unusual Presentation of Autonomic Dysreflexia
Siti Suhaida Sudin ; Julia Patrick Engkasan
The Medical Journal of Malaysia 2012;67(6):616-617
A 48-year-old male with complete tetraplegia C6 presented
with sweating and flushing of the right half of the face and neck that recurred when lying in supine and left lateral positions. The symptoms subsided immediately upon sitting upright or lying in a right lateral position. The symptoms were associated with occasional mild head discomfort rather than headache and were accompanied by marked elevation of blood pressure, which was 190-200/120-130 mmHg compared to his previous baseline blood pressure of 80-90/50-70 mmHg, and he had a heart rate of 60-70 beats per minute. We believe that post-traumatic syringomyelia, found upon further investigation, was the cause of the Autonomic dysreflexia (AD) in this patient. He was advised to avoid the positions causing the symptoms and the progression of symptoms was monitored regularly. AD might not have been diagnosed in this patient because of the atypical and unusual presentations. Therefore, knowledge and a heightened level of awareness of this possible complication are important when treating individuals with spinal cord injury (SCI).
2.Functional Outcomes in Spinal Tuberculosis: A Review of the Literature
Lionelson Norbert YONG ; Fatimah AHMEDY ; Khin Nyein YIN ; Julia Patrick ENGKASAN
Asian Spine Journal 2021;15(3):381-391
Spinal tuberculosis often leads to neurological deficit and subsequent deterioration in functional outcomes. This review assesses the recent evidence on functional outcomes in spinal tuberculosis, highlighting functional recovery, assessment tools for functional measures, and associative factors for functional recovery. Using PubMed, a literature search was done using the terms “spinal tuberculosis,” “tuberculous spondylitis,” “tuberculous spondylodiscitis,” and “functional outcome” for original articles published between January 2010 and December 2019. A total of 191 search results were found. Detailed screening showed that 19 articles met the eligibility criteria: 13 of these focused on surgical methods, four on conservative management, and two on rehabilitation approaches. The outcome measures used for functional assessment were the Oswestry Disability Index (11 articles), Japanese Orthopaedic Association score (n=3), modified Barthel Index (n=2), Functional Independence Measure (n=2), and 36-item Short-Form Health Survey (n=1). Functional outcome was mainly affected by pain, spinal cord compression, and inpatient rehabilitation. No significant difference in functional outcome was found between conservative management and surgery for cases with uncomplicated spinal tuberculosis. Most studies focused on surgery as the mode of treatment and used pain-related functional measures; however, these assessed functional limitations secondary to pain, and not neurological deficits. Further studies may consider examining functional outcomes in spinal tuberculosis by utilizing spinal cord-specific functional outcome measures, to evaluate outcome measures as a prognostic tool, and to measure functional outcomes from specific rehabilitation interventions.
3.Functional Outcomes in Spinal Tuberculosis: A Review of the Literature
Lionelson Norbert YONG ; Fatimah AHMEDY ; Khin Nyein YIN ; Julia Patrick ENGKASAN
Asian Spine Journal 2021;15(3):381-391
Spinal tuberculosis often leads to neurological deficit and subsequent deterioration in functional outcomes. This review assesses the recent evidence on functional outcomes in spinal tuberculosis, highlighting functional recovery, assessment tools for functional measures, and associative factors for functional recovery. Using PubMed, a literature search was done using the terms “spinal tuberculosis,” “tuberculous spondylitis,” “tuberculous spondylodiscitis,” and “functional outcome” for original articles published between January 2010 and December 2019. A total of 191 search results were found. Detailed screening showed that 19 articles met the eligibility criteria: 13 of these focused on surgical methods, four on conservative management, and two on rehabilitation approaches. The outcome measures used for functional assessment were the Oswestry Disability Index (11 articles), Japanese Orthopaedic Association score (n=3), modified Barthel Index (n=2), Functional Independence Measure (n=2), and 36-item Short-Form Health Survey (n=1). Functional outcome was mainly affected by pain, spinal cord compression, and inpatient rehabilitation. No significant difference in functional outcome was found between conservative management and surgery for cases with uncomplicated spinal tuberculosis. Most studies focused on surgery as the mode of treatment and used pain-related functional measures; however, these assessed functional limitations secondary to pain, and not neurological deficits. Further studies may consider examining functional outcomes in spinal tuberculosis by utilizing spinal cord-specific functional outcome measures, to evaluate outcome measures as a prognostic tool, and to measure functional outcomes from specific rehabilitation interventions.
4.Cost of post-stroke outpatient care in Malaysia.
Seyed Majid Akhavan HEJAZI ; Mazlina MAZLAN ; Saini Jeffery Freddy ABDULLAH ; Julia Patrick ENGKASAN
Singapore medical journal 2015;56(2):116-119
INTRODUCTIONThis study aimed to investigate the direct cost of outpatient care for patients with stroke, as well as the relationship between the aforementioned cost and the sociodemographic and stroke characteristics of the patients.
METHODSThis was a cross-sectional study involving patients with first-ever stroke who were attending outpatient stroke rehabilitation, and their family members. Participants were interviewed using a structured questionnaire designed to obtain information regarding the cost of outpatient care. Stroke severity was measured using the National Institute of Health Stroke Scale.
RESULTSThis study comprised 49 patients (28 men, 21 women) with a mean age of 60.2 (range 35-80) years. The mean total cost incurred was USD 547.10 (range USD 53.50-4,591.60), of which 36.6% was spent on attendant care, 25.5% on medical aids, 15.1% on travel expenses, 14.1% on medical fees and 8.5% on out-of-pocket expenses. Stroke severity, age > 70 years and haemorrhagic stroke were associated with increased cost. The mean cost of attending outpatient therapy per patient was USD 17.50 per session (range USD 6.60-30.60), with travelling expenses (41.8%) forming the bulk of the cost, followed by medical fees (38.1%) and out-of-pocket expenses (10.9%). Multiple regression analysis showed that stroke severity was the main determinant of post-stroke outpatient care cost (p < 0.001).
CONCLUSIONPost-stroke outpatient care costs are significantly influenced by stroke severity. The cost of attendant care was the main cost incurred during the first three months after hospital discharge, while travelling expenses was the main cost incurred when attending outpatient stroke rehabilitation therapy.
Adult ; Aged ; Aged, 80 and over ; Ambulatory Care ; economics ; Cross-Sectional Studies ; Female ; Health Care Costs ; Humans ; Malaysia ; Male ; Middle Aged ; Neurology ; economics ; Outpatients ; Rehabilitation ; economics ; Severity of Illness Index ; Social Class ; Stroke ; economics ; Stroke Rehabilitation ; Surveys and Questionnaires
5.A Nationwide Assessment of Psychosocial Adjustment and Its Associated Factors in People With Spinal Cord Injury and Disorders (PA-SCID): The Study Protocol
Danial Asyraf Saharuddin ; Julia Patrick Engkasan ; Aaron Fernandez ; Chew Boon How
Malaysian Journal of Medicine and Health Sciences 2021;17(No.1):57-67
Introduction: This article aims to describe the study protocol of a nationwide survey on psychosocial adjustment of
people with spinal cord injury or disorders (SCID) and its associated factors. SCID is a complex clinical condition
and debilitating public health issues to families and societies. Psychosocial adjustment is represented in this study
as health-related quality of life, perceived social support, coping, independence, and spiritual well-being. This study
aims to determine the psychosocial adjustment of people with SCID in Malaysia. Methods: This is a study protocol
for a nationwide cross-sectional postal and online survey of people with SCID. Cross-cultural adaptation and hypothesis-validity testing will be conducted for independence and spiritual well-being measures. A total of 786 eligible
participants will be recruited from eight public hospitals in the Peninsular, Sabah, and Sarawak. The questionnaires
include the World Health Organization Quality of Life-Brief (WHOQOL-BREF), Spinal Cord Independence Measure
– Self-report (SCIM-SR), Brief Coping Orientation to Problems Experienced (Brief COPE), Medical Outcome Survey –
Social Support (MOS-SSS) and Functional Assessment of Chronic Illness Therapy – Spiritual Well-being Short Version
(FACIT-Sp-12). HRQoL measured by WHOQOL-BREF is the main primary outcome of this study. Independent association between the sociodemographic and clinical characteristics with the outcome variables will be determined
separately using multiple linear regression. Discussion: The findings of the study will be informative regarding the
causes of SCID and factors associated with psychosocial adjustment in Malaysia. It will benefit future medical and
public health initiatives to improve on the existing rehabilitation programs and social services to people with SCID.