1.The hidden impact of childhood cancer on the family: a multi-institutional study from Singapore.
LeLe AUNG ; Sabai Myat SAW ; Mei Yoke CHAN ; Thandar KHAING ; Thuan Chong QUAH ; Helena M VERKOOIJEN
Annals of the Academy of Medicine, Singapore 2012;41(4):170-175
INTRODUCTIONThe care of children with cancer creates emotional and financial hardships for their families. There is a lack of information on the impact of childhood cancer on the family as a whole in Singapore. Thus, we set out to assess the financial impact as well as its psychosocial impact in our local context.
MATERIALS AND METHODSAll patients diagnosed and treated for cancer at the Departments of Paediatrics, KK Women's and Children's Hospital and National University Hospital, Singapore were eligible for this study. Families of these patients completed 2 self-administered questionnaires: (i) About-you and your-family and (ii) the Impact-On-Family scale. For the latter, the total score was obtained by the summation of all scores, where high scores correlated to high impact.
RESULTSSeventy-nine parents were enrolled during the study period from October 2008 to February 2009. Being of Malay/Indian origin was associated with a high overall family burden. On the other hand, being of Malay/Indian origin was also associated with most successful at mastery when a child was diagnosed with cancer (P = 0.001). In addition, when compared to caregivers who remained employed, those who were asked to quit their job, experienced a higher Financial Burden (P = 0.03), a high Familial/Social Burden (P = 0.05) and a high Personal Strain (P = 0.03).
CONCLUSIONChildhood cancer impacted family life in Singapore at many levels. In particular, the factors involved are various cultural discourses; employment status of caregivers; and those whose leave/pay are affected.
Adult ; Caregivers ; psychology ; Cost of Illness ; Employment ; economics ; Family ; psychology ; Family Health ; Female ; Humans ; Male ; Neoplasms ; economics ; psychology ; Singapore ; Surveys and Questionnaires
2.Stress levels amongst caregivers of patients with osteoporotic hip fractures - a prospective cohort study.
Mashfi Qul SIDDIQUI ; Lynette SIM ; Joyce KOH ; Stephanie FOOK-CHONG ; Carol TAN ; Tet Sen HOWE
Annals of the Academy of Medicine, Singapore 2010;39(1):38-42
INTRODUCTIONWe evaluated if there was significant stress in caregivers of elderly patients with osteoporotic hip fractures and determine any contributory factors.
MATERIALS AND METHODSA prospective cohort study was performed from June 2005 to June 2006 in a single tertiary hospital. Patients admitted during this period and their primary caregivers were interviewed on admission and at 6 months. Information on patient's demographics, comorbidities, functional and mental status, placement post-discharge and financial strain were noted. Caregiver stress was measured using the caregiver strain index (CSI). Relationships between key variables were analysed to derive possible correlations.
RESULTSThe study comprised caregivers of 76 patients with a mean age of 77 years (range, 50 to 95; SD, 11). Within 1 week of admission, 45 of the 76 caregivers (59.2%) were significantly stressed based on the CSI while at 6 months, 30 of the caregivers (50%) were significantly stressed. The mean CSI within 1 week of admission and at 6 months post-admission was 7.18 and 6.25 respectively (P = 0.042). The most significant contributory factor to stress was financial strain (P = 0.01) attributable to medical bills, rehabilitation costs and transport expenses.
CONCLUSIONThere is a significant amount of stress that is experienced by caregivers of elderly patients with hip fractures which commences from admission of the patient and it remains high at 6-months post-fracture. Financial strain has been found to be the only significant cause on both univariate and multivariate analysis. Adequate resources should be available to caregivers of patients with osteoporotic hip fractures.
Aged ; Aged, 80 and over ; Caregivers ; economics ; psychology ; Cost of Illness ; Female ; Hip Fractures ; etiology ; rehabilitation ; Humans ; Male ; Middle Aged ; Osteoporosis ; complications ; Prospective Studies ; Stress, Psychological
3.A Study on Family Satisfaction with Community Mental Health Center Services in Gyeonggi Province by Families of People with Mental Illness.
Journal of Korean Academy of Nursing 2009;39(1):124-135
PURPOSE: The purpose of this study was to evaluate the service satisfaction for families who have someone with mental illness, and are using community mental health centers in Gyeonggi Province. METHODS: The participants in this study were 796 family members. Data were collected using Family satisfaction survey questionnaire developed by the author (23 items on family service and 15 items on client service). RESULTS: The total satisfaction level for the service with family and client resulted in above average scores. Of the 23 service items, data showed the highest level of satisfaction was with professional skills and attitude, and day rehabilitation programs, and the lowest for professional activities for advocacy and social welfare benefits, emergency & crisis intervention, medical expense subsidies. Of the 15 service items, job and housing related service had the lowest level of satisfaction. CONCLUSION: It is recommended that psychiatric emergency & crisis intervention programs and system development be accelerated. Also, there is a need to develop medical expense subsidy programs for older family caregivers, job and housing focused rehabilitation programs and community facilities for the client, as well as more active and powerful professional advocate activities for persons who have mental disabilities and their families.
Adolescent
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Adult
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Aged
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Aged, 80 and over
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Attitude of Health Personnel
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Caregivers/economics/*psychology
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Community Mental Health Services/*standards
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Female
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Health Services Needs and Demand
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Humans
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Male
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Middle Aged
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*Personal Satisfaction
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Questionnaires