1.Awareness of the Patients with Senile Cataract. Experience in the Preoperative Orientation.
Atsuko ITOH ; Etsuko WAKAMATSU ; Kiyo SUZUKI ; Kiyomi ARAKAWA ; Chikako YASHIRO ; Etsuko HATAKEYAMA ; Tetsuko SAITO ; Chieko MIYAGI ; Tomomi TERUI ; Ichiko KUDO ; Nobuko SATO ; Akiko SHIBATA
Journal of the Japanese Association of Rural Medicine 1995;44(4):569-572
A total of 78 patients were operated on for senile cataract in our hospital in 1985. The number almost doubled to 142 in 1992, more than 90 percent of whom received the intraocular lens. We asked each patient postoperatively to submit a questionnaire, and found the greatest inconvenience suffered before surgery was the difficulty in reading the letters. Patients with senile cataract have anxiety due to extremely weak eyesight, therefore, we believe it is very important for them to receive orientation before the operation. Until recently, we used the B5-sized (10.12″×7.17″) leaflet for a guide to the operation, but the type was too small for them to read. We renewed the guide by using a F8-sized (17.95″× 14.96″) sketch book. We put them in the sickrooms Just before they patients left our hospital, we asked them for their opinion about the guide. 90 percent of the patients said that they were satisfied with the size of the type, all of them said that the contents are easy to understand, and 50 percent said they read the guide more than twice.
In conclusion, we found that the sketch book, full of illustrations, was quite convenient for senile patients and read repeatedly. It was also a great help to them, because it gave them encouragement and made it easy for them to prepare themselves for the operation.
2.Self-perceived Burden on Families and Related Factors among Patients with Cancer Undergoing Outpatient Chemotherapy
Miwa AOKI ; Yoko MINAMIGUCHI ; Akiko HATAKEYAMA ; Yuki MOROOKA ; Yukiko TATSUMI ; Naotoshi NAKAMURA ; Harue ARAO
Palliative Care Research 2020;15(2):91-99
Objective: This study aimed to investigate self-perceived burden (SPB) on families experienced by patients with cancer undergoing outpatient chemotherapy, and factors that affect SPB. Methods: Self-administered questionnaires were sent to patients with cancer in 17 designated cancer care hospitals. Of 1,981 effective responses (response rate 54.7%), 600 patients with cancer undergoing outpatient chemotherapy were included in this study. Results: More than 85% of participants reported SPB on their families. Multiple logistic regression analyses revealed independent physical and social factors that influenced the SPB on families among patients with cancer undergoing outpatient chemotherapy. Physical factor was recurrent or metastasized. Social factors were 40s or younger; living with families; marital history; worries of work or financial problems; worries of interpersonal relationship with families and others. Discussion and Implications: Our findings suggest that medical staff may need to offer psychological care according to patient’s cancer progression and support according to their social background to reduce SPB on their families.
3.Are the Values of Nurses Related to Their Treatment Preferences for Patients with Advanced Cancer? A Cross-sectional Vignette-based Study
Miwa AOKI ; Eiko MASUTANI ; Akiko HATAKEYAMA ; Ayumi TAKAO ; Harue ARAO
Palliative Care Research 2022;17(1):23-31
Objectives: This study aimed to explore nurses’ treatment preferences for patients with advanced cancer and investigate the factors affecting these preferences. Methods: Self-administered questionnaires were distributed to nurses at two hospitals who had experience in cancer patient care. Nurses recorded their treatment preferences and nurses’ value considered in their preferences for two vignettes of patients with advanced cancer that differed in performance status (PS) and prognosis. Univariate and multivariate analyses were used in this study. Results: Of 383 nurses, 300 (valid response rate, 78.3%) responded. Multiple regression analyses revealed that regardless of patients’ prognosis or PS, nurses’ treatment preferences were associated with their values regarding respecting patient wishes and the low probability of prolonging survival through treatment. For case with one month survival prognoses, nurses valued avoidance of discomfort, associated with side effects through treatment. Nurses recommended treatment in case with prognoses of 6 months and PS of 1, while they responded with almost same percentages of recommendation of continuing and discontinuing treatment for those with prognoses of 1 month and PS of 3. Conclusions: Nurses’ treatment preferences were associated with nurses’ values. Nurses’ involvement in treatment decision-making processes after sharing goals for patients’ treatment is potentially beneficial.
4.Cancer Patients’ Perceptions of the Scope of Palliative Care and Related Factors
Yuri TAKEI ; Sena YAMAMOTO ; Yuki MOROOKA ; Yoko MINAMIGUCHI ; Akiko HATAKEYAMA ; Yukiko TATSUMI ; Harue ARAO
Palliative Care Research 2021;16(1):35-43
Objective: This study aimed to investigate Japanese cancer patients’ perceptions of the scope of palliative care and factors that affect those perceptions. Methods: An anonymous, self-administered questionnaire was distributed to hospitalized patients and outpatients in designated cancer care hospitals in Japan. Data were first summarized using descriptive statistics. Then, using a χ² test followed by multiple logistic regression analysis, we compared patients who recognized palliative care as terminal care with those who viewed it as care that is relevant earlier in the disease course. Results: Of 3,622 questionnaires, 1,981 were completed (response rate: 54.7%). A total of 1,187 (59.9%) respondents perceived palliative care as care that could be implemented early in the disease course, whereas 414 (20.9%) respondents perceived palliative care as only relevant for the end-of-life stage. Respondents who had received palliative care for symptoms were significantly less likely to recognize it as terminal palliative care only than those who perceived that they were not the subject in the scope of care for symptoms. A diagnosis of advanced cancer and being under 40 years old were factors significantly related to the perception of palliative care as terminal only. Discussion and Implications: Our findings suggest that health care providers should be conscious of the possibility that palliative care practices affect patients’ perceptions of palliative care. Providing information about palliative care before occurring painful symptoms can help promote patients’ access to and understanding of it.