1.Registry of infl ammatory demyelinating diseases of the central nervous system in the Asia-Pacifi c region
Qi Cheng ; Allan G. Kermode ; Bhim Singhal ; Kwang Ho Lee ; Victor HT Chong ; Nguyen Thanh Binh ; Ching-Piao Tsai ; Jusuf Misbach ; Guo-Xin Jiang ; Sten Fredrikson
Neurology Asia 2012;17(1):49-54
Background and Objective: Comparable data are sparse for infl ammatory demyelinating diseases of
the central nervous system (CNS) in the Asia-Pacifi c region, and we aimed to establish a registry
of patients with such diseases in the region. Methods: A network of neurologists in the Asia-Pacifi c
Region was established to register patients with the targeted diseases. A standardized register form and
relevant instructions in English, translated into the local language when needed, were prepared before
the study start and used for data collection. Results: Eight study centres from different countries/areas
participated in the study. In total, 857 patients with a validated diagnosis of different infl ammatory
demyelinating diseases of the CNS were registered, 591 females and 266 males with a female-to-male
ratio 2.2. The mean age at onset for all patients was 35.9 (SD: 12.9) years, signifi cantly younger (p =
0.010) for females (35.1 years, SD: 12.6 years) than for males (37.6 years, SD: 13.4 years).
Conclusion: Patients with different infl ammatory demyelinating diseases of the CNS were in the fi rst
time registered in a multi-centre study from eight countries/areas in the Asia-Pacifi c region. A platform
and basis has been established for further study in the fi eld.
Result Analysis
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