Objective: The reliability and validity of a scale to evaluate the supportive functions of community-based self-help groups (SHGs) for cancer survivors, which was named the Evaluation of Supportive Functions Scale (ESFS) was investigated. Moreover, factors related to the evaluation of supportive functions were identified. Methods: An anonymous, self-administered survey comprised of items related to the background, evaluation of supportive functions of SHGs, and participation status (frequency of participation, satisfaction with participation, and types of activities undertaken) was conducted with members of SHGs for cancer survivors (n=1,350). Valid responses (573 valid responses, 42.4%) were analyzed and ESFS was developed based on the responses. Results: The 21-item ESFS had excellent internal consistency. Factor analyses revealed a 4-factor solution of internally consistent subscales: Learning, Helping each other, Social involvement and Catalyst for personal growth. There was a significant relationship between participants' evaluation of supportive functions of SHGs with gender, role in the SHGs and type of cancer. The subscales were significantly related to the frequency of participation, satisfaction, and the type and range of activities that were undertaken. Conclusions: ESFS can measure participants' recognition of the utility of SHGs. We have discussed the practical applications of the scale as a tool for measuring the effectiveness of SHGs.

Background/Aims: There are few published registry studies from Asia on pediatric inflammatory bowel disease (IBD). Registry network data enable comparisons among ethnic groups. This study examined the characteristics of IBD in Japanese children and compared them with those in European children. Methods: This was a cross-sectional multicenter registry study of newly diagnosed Japanese pediatric IBD patients. The Paris classification was used to categorize IBD features, and results were compared with published EUROKIDS data. Results: A total of 265 pediatric IBD patients were initially registered, with 22 later excluded for having incomplete demographic data. For the analysis, 91 Crohn’s disease (CD), 146 ulcerative colitis (UC), and 6 IBD-unclassified cases were eligible. For age at diagnosis, 20.9% of CD, 21.9% of UC, and 83.3% of IBD-unclassified cases were diagnosed before age 10 years. For CD location, 18.7%, 13.2%, 64.8%, 47.3%, and 20.9% were classified as involving L1 (ileocecum), L2 (colon), L3 (ileocolon), L4a (esophagus/stomach/duodenum), and L4b (jejunum/proximal ileum), respectively. For UC extent, 76% were classified as E4 (pancolitis). For CD behavior, B1 (non-stricturingon-penetrating), B2 (stricturing), B3 (penetrating), and B2B3 were seen in 83.5%, 11.0%, 3.3%, and 2.2%, respectively. A comparison between Japanese and European children showed less L2 involvement (13.2% vs. 27.3%, P< 0.01) but more L4a (47.3% vs. 29.6%, P< 0.01) and L3 (64.8% vs. 52.7%, P< 0.05) involvement in Japanese CD children. Pediatric perianal CD was more prevalent in Japanese children (34.1% vs. 9.7%, P< 0.01). Conclusions Upper gastrointestinal and perianal CD lesions are more common in Japanese children than in European children.