1.Family-perceived usefulness of a pamphlet for families of imminently dying patients: a multicenter study
Ryo Yamamoto ; Hiroyuki Otani ; Naoki Matsuo ; Takuya Shinjo ; Satsuki Uno ; Hikaru Hirose ; Tatsuhiro Matsubara ; Chizuko Takigawa ; Hiroshi Maeno ; Kazuyoshi Sasaki ; Yoshikazu Chinone ; Masayuki Ikenaga ; Tatsuya Morita
Palliative Care Research 2012;7(2):192-201
Purpose: To clarify the family-perceived usefulness of a pamphlet for families of imminently dying patients. Methods: Physicians and/or nurses provided medical and practical information about the dying process using a pamphlet for families of imminently dying patients. We surveyed family members 6 months after the death of the patient about the perceived usefulness. Results: We sent out a questionnaire to 325 bereaved, and obtained an answer from 260 (response rate: 85%). Overall, 81% reported the pamphlet to be “very useful” or “useful”. The experience reported by the bereaved included: “Helped me to understand the dying process” (84%); “Helped me to understand how symptoms and changes occur” (76%), “Useful in preparation for patient's death“ (75%), “Helped me to understand the physical conditions of the patient” (75%), “Helped me to know what I can do for the patient” (74%). Conclusion: “A pamphlet for families of imminently dying patients” may be useful for members of an imminently dying patient's family.
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