1.Difficulties Faced by Family Caregivers for Terminal Cancer Patient Cessation of Home-based
Kiyomi Kawase ; Naoko Inamura ; Erika Onuki ; Nami Ikenaga ; Saori Fuziyama ; Chihoko Wada
Palliative Care Research 2017;12(2):194-202
The aims of this study were to clarify difficulties experienced by families facing the cessation of home-based care for terminal cancer patients, and to review the associated necessary nursing practices. We conducted semi-structured interviews with ten families. A qualitative research design was selected for this study, and the data was interpreted using content analysis techniques. The results were integrated into seven major categories: “unable to assess present symptoms for lack of understanding terminal cancer symptoms,” “feeling emotional pain during the patient’s aggravated condition,” “difficulties in coping with various patients’ physical symptoms: problems regarding inexperienced care,” “exhausted by living 24 hours a day with patient: lack of support, because of constraints from important people in the caregiver’s life,” and “difficulties faced by primary family caregivers in preparing a treatment environment.” Family caregivers were not able to prepare a treatment environment, because of a lack of understanding the symptoms of terminal cancer and an unwillingness to admit experiencing mental and physical burdens. The findings of this study suggested that the role of a nurse is to understand the family’s condition and values, provide required information in advance, and to adjust and prepare the treatment environment.
2.Identifying the Nature of Nursing for Patients Having Appearance Changes Due to Cancer Treatment: Results from Focus Group Interviews with Nurses in Cancer Hospitals
Keiko Iino ; Taeko Shimazu ; Mieko Sagawa ; Shigeaki Watanuki ; Chisato Ichikawa ; Miho Kurihara ; Hideo Uesugi ; Yoko Kurihara ; Hatoe Sakamoto ; Naoko Inamura ; Akiko Sugisawa ; Kimiko Miyata ; Namiko Nagaoka
Palliative Care Research 2017;12(3):709-715
Purpose: This study aimed at identifying the nature of nursing for patients who have appearance changes due to cancer treatment. Methods: Nurses’ focus group interviews were conducted at two cancer hospitals. The data were analyzed qualitatively. This study was approved by the Research Ethics Committee at the study hospitals. Results: Six focus group interviews were conducted, including a total of 21 participants. The participants’ mean age was 39.2 (SD=6.0) years. Their mean years of professional experience was 16.3 (SD=5.8) years. The participants also included a total of 16 Certified Nurse Specialists and Certified Nurses. Interviews took an average of 42 minutes. Four core categories derived from interviews were: “providing information in advance that is necessary for those having the risk of appearance changes to predict and to prepare,” “providing support to enhance patients’ self-care according to the processes of appearance changes in their daily lives,” “advocating patients’ decision to improve their quality of life,” and “utilizing specialty of multi disciplines through care coordination and collaboration.” Conclusions: Further study will systematically analyze details of appearance changes and necessary care associated with different cancer treatment methods, organ sites, and treatment cycles.