1.Family response to presume consent system on organ donation from a review of literature
Makmor Tumin ; Khaled Tafran ; NurulHuda Mohd Satar
International e-Journal of Science, Medicine and Education 2015;9(3):20-26
Background: Most countries around the world
have experienced a shortage in organs needed for
transplantation. Organ donation performance is widely
attributed to two important factors: the legislation and
the role of the family. Thus, this literature review aims
to examine the willingness of people for organ donation
while highlighting the importance of having a presumed
consent system.
Methodology: In this study, we explored many papers
of which 10 articles were studied to gain conclusive
understanding of the two factors and their interactions.
Results: Our analysis of literature regarding the
legislation and family response showed that the
presumed consent system for organ donation accounted
for 21 – 30% higher organ donation rates than the
informed consent system. We also found a gap between
the willingness of people to donate their own and their
relatives’ organs. The ratio of people willing to donate
their organs after death was estimated to be 10 – 12%
higher than the ratio of those willing to donate their
relatives’ organs. Furthermore, the study revealed the
importance of a presumed consent system in raising the
willingness of the people and their relatives for donation,
but that did not eliminate the gap.
Conclusion: Countries seeking to overcome organ
shortage and increase organ donation rates by moving
towards the presumed consent system should consider
the importance of providing families with proper
information about this system. The fact that a gap
between the willingness of the people to donate their
own as well as their deceased relatives’ organs exists,
has to be conveyed to the governments, which will be
helpful in optimising organ donation rates.
Tissue and Organ Procurement
2.Muslims’ views on the permissibility of organ donation: The case of Malaysia
Makmor Tumin ; Abdillah Noh ; NurulHuda Mohd Satar ; Khaled Tafran ; Nawi Abdullah ; Wan Ahmad Hafiz Wan Md Adnan ; Mohamad Yusoff Sanusi
International e-Journal of Science, Medicine and Education 2016;10(1):41-48
Background: Some argue that Malaysia’s extremely low
organ donation rate is attributed to religion, specifically
Islam. Testing this argument, this study asked Malaysian
Muslims their views regarding various issues on organ
donation and examined whether their decisions to
donate organs are framed by religious beliefs.
Materials and Methods: This study investigated the
perspectives of Malaysian Muslims between October
and December 2013 in Kuala Lumpur. Self-administered
questionnaires were distributed to 900 people, with 829
responses collected (92% response rate). Respondents’
verbal consent was taken before proceeding with the
survey.
Results: The survey found that more than half of
respondents felt that organ donation is permitted in
Islam and that it is a communal responsibility. However,
the same proportions were unsure on the issues of rewards
for organs or on whether Islam permits the procuring of
organs from brain dead patients.
Conclusions: Malaysian Muslims are not against organ
donation; however, encouraging organ donation requires
the state to address public concerns on Islam’s views on
this sensitive issue through effective policy tools to help
address these gaps in Malaysian Muslims’ understanding
of organ donation. The organ donation rate could
improve by using Islamic scholars as ambassadors for an
organ donation drive to convey the message of Malaysia’s
urgent need for organ donation.
Tissue and Organ Procurement
3.Assessing Countries’ Deceased Organ Donation and Transplantation Performance
Makmor Tumin ; Khaled Tafran ; Wan Ahmad Hafiz Wan Md Adnan ; Ahmad Farid Osman
Malaysian Journal of Medicine and Health Sciences 2023;19(No.2):170-174
Introduction: Donors per million population and transplantations per million population are standardized, widely
used indicators to assess and compare countries’ performance in organ donation and transplantation. This study aims
to investigate these two particular metrics of organ donation and transplantation performance, and to introduce a
new index, namely, ‘transplantations per patients on the waiting list’. Methods: Secondary analyses of data on 23
countries in 2016 were used to construct the transplantations per patients on the waiting list indicator for kidney,
liver, pancreas, heart, and lung transplantation, as well as for the transplantation of any of the five aforementioned
organs. Results: According to the transplantations per patients on the waiting list, the best-performing countries in
terms of organ donation and transplantation are Belarus for kidney transplantation, Finland for liver and pancreas
transplantation, Australia for heart transplantation, and France for lung transplantation. Considering all five organs
together, Sweden, Australia, Finland, Austria, and Poland were the top five best-performing countries, followed by
Spain in the sixth position. Conclusion: The deceased transplantations per patients on the waiting list can be an
alternative indicator to assess performance, along with the widely-used donors and transplantations per million population, but still has its limitations in certain scenarios.