1.Coping strategies of Filipino mothers of children with congenital heart disease in a Tertiary Hospital in the Philippines
Eva Belingon Felipe-Dimog ; Ma-Am Joy Realce Tumulak ; Emma Liza A. Dacquigan ; Jerome A. Padilla
Acta Medica Philippina 2024;58(Early Access 2024):1-9
Background and Objective:
Mothers play a significant role as primary caregivers for children with congenital heart disease (CHD) within the family. Given the complex health needs of children with CHD, coping strategies are needed to deal with the challenges associated with caring for their children with the condition. Coping mechanisms encompass fostering resilience, seeking support, and maintaining a positive outlook to navigate stress, uncertainty, and obstacles throughout their child's medical journey with CHD. The objective of this study is to explore the coping strategies employed by mothers of children diagnosed with CHD in a tertiary hospital in the Philippines.
Methods:
Employing a descriptive qualitative study design, data was gathered through key informant interviews utilizing a semi-structured topic guide, which aimed to explore the perspectives and experiences of mothers with children with CHDs. Ethical approval was obtained, and data collection occurred from January to March 2016. Interview transcripts were recorded, transcribed verbatim, and underwent content analysis. Themes derived from the analysis were then validated and confirmed by the study participants.
Results:
A total of 11 mothers voluntarily participated in the study. These participants expressed utilizing various coping strategies to manage their child's condition, including seeking assistance from both physicians and traditional healers, advocating for their children, receiving support from their family and friends, regulation of emotion, and prayer and faith in God.
Conclusion
This study sheds light on the coping mechanisms used by mothers in raising thier children with CHD, highlighting the value of spirituality and psychological support in their journey. Enhancing assistance for impacted families and advancing genetic counseling services are two benefits of incorporating these findings into healthcare practice.
Heart Defects, Congenital
;
Coping Skills
2.Needs and coping during the COVID-19 pandemic among families of children with Autism Spectrum Disorder in a Government Tertiary Hospital
Marie Khatrina C. Lagang-Buenaventura ; Victoria Dominique C. Ang-Nolasco
Acta Medica Philippina 2024;58(7):152-162
Background:
The COVID-19 pandemic has affected the well-being of children with Autism Spectrum Disorder (ASD) and their families. The core deficits of the condition and increased parental stress during this time made them more vulnerable.
Objectives:
This study aims to explore how the pandemic has affected these families by identifying their needs and capabilities in order to provide support.
Methods:
A total of 227 parents of children with ASD completed an online survey consisting of items on sociodemographic, family needs, and coping strategies. Descriptive statistics were used and t-test and ANOVA/Kruskal Wallis were used to determine the relationship between parent and child factors with needs and coping.
Results:
Needs for Information, Community Services, and Finances are the top categories while the greatest identified need during this pandemic was for financial assistance. Religiosity, Problem-Solving, and Cognitive Reappraisal were the widely used coping strategies by the parents. Fathers, younger children, daughters with ASD, and having more than one child with ASD showed significant association with needs. Parents with primary and tertiary education were associated with use of the cognitive reappraisal strategy and those with jobs were associated with substance use.
Conclusion
Families of children with ASD have multiple needs during this pandemic, from autism-specific information and services, to more generic concerns such as financial assistance. Despite these challenges, these families have positive strategies in place to facilitate coping mechanisms.
Autistic Disorder
;
COVID-19
;
Needs Assessment
;
Coping Skills