Development and application of data standards for real world studies of pancreatic diseases
10.3760/cma.j.cn115610-20230412-00165
- VernacularTitle:胰腺专病真实世界研究的数据标准制订与运用
- Author:
Kai ZHANG
1
;
Yongqian ZHU
;
Jie YIN
;
Lingdi YIN
;
Zipeng LU
;
Yi MIAO
;
Kuirong JIANG
Author Information
1. 南京医科大学第一附属医院（江苏省人民医院）胰腺中心 南京医科大学胰腺研究所，南京 210029
- Keywords:
Pancreatic diseases;
Real world;
Database;
Data sharing;
Data standards
- From:Chinese Journal of Digestive Surgery
2023;22(5):604-609
- CountryChina
- Language:Chinese
-
Abstract:
Pancreatic diseases is a kind of complex, high-risk gastrointestinal diseases. Pancreatic cancer is highly malignant and seriously endangers people′s health. Developing multi-center, large-scale real world research can better understand the incidence patterns and treatment outcomes of pancreatic diseases. Based on the multi-center and heterogeneous data, the authors for-mulate data standards for real world studies of pancreatic diseases, and build a database of pancreatic cancer, integrating and sharing data from multi-center sources, in order to fully explore the scientific research value of pancreatic cancer clinical information, and provide experience and reference for the construction of other real world research specific disease databases in the future.
