A qualitative research on dyadic experience of disease management in patients with decompensated cirrhosis and their spouses returning to the family
10.3760/cma.j.cn211501-20221010-03112
- VernacularTitle:失代偿期肝硬化患者及其配偶回归家庭二元疾病管理体验的质性研究
- Author:
Yuan YUAN
1
;
Siyu LI
Author Information
1. 郑州大学第一附属医院内科医学部，郑州 450000
- Keywords:
Liver cirrhosis;
Spouses;
Decompensated period;
Return to families;
Dyadic
- From:
Chinese Journal of Practical Nursing
2023;39(22):1709-1714
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the real experience of decompensated cirrhosis patients and their spouses returning to family dual disease management and to provide a reference for the targeted intervention strategies.Methods:Totally 13 decompensated cirrhosis patients and their spouses admitted in Infectious Disease Department, the First Affiliated Hospital of Zhengzhou University from February 2022 to April 2022 were recruited for semi-structured interviews. Colaizzi 7-step analysis was used to summarize and extract the themes.Results:The final analysis yielded a total of 8 generic categories belonging to 3 categories based on the dyadic illness management theory. These were negative disease perception including disease cognitive bias, lack of complication awareness, negative family management including low self-worth, conflict management, poor management compliance, economic pressure, passive attitude, dyadic health needs to be improved including negative emotional dominance, self-perceived discrimination, communication disorders, intimacy decrease.Conclusions:Decompensated cirrhosis patients and their spouses have negative and resistant psychology in disease perception, management compliance, management attitude, behavior, and so on, clinical medical staff should be aimed at decompensated cirrhosis patients and their spouses on the health education to strengthen disease, guiding role transformation, gives targeted positive psychological intervention, to provide multi-dimensional social support, to improve the negative mood, reduce stigma and improve binary health.
