Quality of life and caregiver burden in caregivers of patients with cancer
- VernacularTitle:Хавдартай эмчлүүлэгчийн асран хамгаалагчдын ачаалал, амьдралын чанарыг судлах нь
- Author:
Munkhjargal M
1
;
Odontuya D
2
Author Information
1. Mongolian National Cancer Center
2. Mongolian National University of Medical Sciences
- Publication Type:Journal Article
- Keywords:
quality of life;
cancer;
load;
palliative care
- From:Innovation
2020;14(2):22-26
- CountryMongolia
- Language:Mongolian
-
Abstract:
Background:The World Health Organization (WHO) estimates that the number of cancerrelated deaths will increase by 45 percent between 2008 and 2030. Following this estimate, many projects and programs have been implemented to improve cancer prevention, diagnosis, and treatment, but the number of new cancer cases and deaths is increasing worldwide. In 2018, 6073 new cancer cases were registered in Mongolia.2 As of 2018, there are 19,427 cancer patients under the supervision of aimag and district oncologists. In our country, 78.8 percent of all cancers are diagnosed in stage 3.4 and are transferred to palliative care. However, in our country, there is a lack of research on the family, caregiver burden and quality of life of patients receiving palliative care. Therefore, we aimed to assess the caregivers of burden and quality of life of family of cancer patients in this study.
Methods:The survey was conducted between November 2017 and December 2018 using an
analytical instantaneous model. The survey data were collected from caregivers of cancer
patients at the National Cancer Center, Ulaanbaatar District Health Center, Green Ger, and
Iveel Hospice. Quality of life was assessed using the WHO WHOQOL-BREF method. The caregiver
burden of cancer patients receiving palliative care was assessed using the Caregiver burden
inventory international standard questionnaire.
Results:The study involved 180 caregivers aged 20 to 72 years. 82.8 percent of the total guardians
are women and 17.2 percent are men. The quality of life of the caregivers surveyed was 65.0
percent. In terms of the quality of life of caregivers, the environment is 59.9 percent, social
relations 69.2 percent, psychological 70.8 percent, and physical 64.0 percent. The quality of
life of caregivers was rated 69.8 percent for men and 64.0 percent for women, or relatively low
for women. A statistically significant indicator is that the quality of life of caregivers decreases
as patients spend more time per day (p = 0.013). The average workload score for caregivers is
32.97±11.8 for men and 40.53±14.9 for women, which is a statistically significant difference. The
inverse relationship between caregiver quality of life and workload is a statistically significant
indicator. / r = - 0.61 /.
Conclusions:The quality of life of caregivers participating in the study decreased. In addition,
91.7 percent have a caregiver burden level of 2 and more, which indicates that the caregivers
of cancer patients are overworked. According to the results of the linear regression analysis, the
quality of life decreases by 0.56 units when the caregiver’s workload increases by 1 unit.
- Full text:Innovation-2020-14(2);22-26.pdf
