Nursing care of patients with transthyretin amyloid polyneuropathy
10.3760/cma.j.cn211501-20220407-01049
- VernacularTitle:转甲状腺素蛋白淀粉样变性多发性神经病患者的护理
- Author:
Yingxiao BAO
1
;
Xiuqin FENG
;
Yinfang WANG
;
Liyuan ZHOU
Author Information
1. 浙江大学医学院附属第二医院护理部，杭州 310000
- Keywords:
Amyloidosis;
Polyneuropathies;
Nursing care;
Genetic counseling;
Urinary tract management
- From:
Chinese Journal of Practical Nursing
2022;38(27):2133-2138
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To summarize the characteristics and nursing experience of patients of transthyretin amyloid polyneuropathy.Methods:A retrospective study was performed in 9 patients with transthyretin amyloid polyneuropathy from different area in china from February 2018 to October 2021 in the Second Affiliated Hospital Zhejiang University School of Medical, summarized nursing points:used list to popularize disease knowledge, improved the nursing skills of rare diseases; did a good job in the safety nursing of sensory motor disorders to prevent pressure sores, scalds, fall, thrombosis and other complications, paid attention to the nursing of autonomic nerve dysfunction, prevented postural hypotension. Observe and prevent heart failure, manage diarrhea and constipation, and applied the guide to personalized urinary tract management;provided genetic counseling services, personalized continuing care and psychological care.Results:During hospitalization, the clinical symptoms of 9 patients were improved to varying degrees, after 3 months of telephone follow-up after discharge, 9 patients had no adverse events such as pressure ulcer and fall.Conclusions:By improving specialized skills, predictive risk management and symptom care, the symptoms of postural hypotension, urinary retention, constipation, diarrhea and other symptoms of transthyretin amyloid polyneuropathy patients can be prevented and improved, and adverse events such as falls and pressure sores can be avoided.
