A minimum data set for traumatic brain injuries in Iran.
10.1016/j.cjtee.2021.09.007
- Author:
Maryam EDALATFAR
1
;
Mohsen SADEGHI-NAINI
1
;
Hamid Reza KHAYAT KASHANI
1
;
Mitra MOVAHED
2
;
Mahdi SHARIF-ALHOSEINI
3
Author Information
1. Department of Neurosurgery, Imam Hossein Hospital, Shahid Beheshti University of Medical Sciences, Tehran, Iran.
2. Department of Psychology, HELP University, Kuala Lumpur, Malaysia.
3. Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran. Electronic address: sharif.mahdi@gmail.com.
- Publication Type:Review
- Keywords:
Data systems;
Registries;
Traumatic brain injuries
- MeSH:
Brain Injuries, Traumatic/epidemiology*;
Data Collection;
Hospitals;
Humans;
Iran/epidemiology*;
Registries
- From:
Chinese Journal of Traumatology
2022;25(5):283-292
- CountryChina
- Language:English
-
Abstract:
PURPOSE:Traumatic brain injury (TBI) is one of the major public health concerns worldwide. Developing a TBI registry could facilitate characterizing TBI, monitoring the quality of care, and quantifying the burden of TBI by collecting comparable and standardized epidemiological and clinical data. However, a national standard tool for data collection of the TBI registry has not been developed in Iran yet. This study aimed to develop a national minimum data set (MDS) for a hospital-based registry of patients suffering from TBI in Iran.
METHODS:The MDS was designed in 2 phases, including a literature review and a Delphi study with content validation by an expert panel. After the literature review, a comprehensive list of administrative and clinical items was obtained. Through a two-round e-Delphi approach conducted by invited experts with clinical and research experience in the field of TBI, the final data elements were selected.
RESULTS:A MDS of TBI was assigned to 2 parts: administrative part with 5 categories including 52 data elements, and clinical part with 9 categories including 130 data elements.
CONCLUSION:For the first time in Iran, we developed a MDS specified for TBI consisting of 182 data elements. The MDS would facilitate implementing a TBI's national level registry and providing essential, comparable and standardized information.
